SPAGN Member Groups

Our members

Please find our member organizations listed below. It gives you a sense of SPAGN’s extensive reach and the notable work our members do. This can be in the most challenging of environments, for example where healthcare, medicines and equipment for sarcoma treatments and care do not exist, are in short supply or not accessible equitably. We know that by working together with other organizations and initiatives we can achieve more.

1. Australia: Sock it to Sarcoma
2. Austria: GIST Support Österreich
3. Belgium: Cum Cura
4. Bulgaria: GIST and STS Alliance for Patients - Bulgaria
5. Bulgaria: TOGETHER FIGHTING SARCOMA
6. Bulgaria: Sarcomafree Foundation
7. Brazil: Desmóide Brasil | Associação Brasileira do Tumor Desmóide
8. Finland: Finnish GIST and Sarcoma Patient Network
9. France: Info Sarcomes
10. France: SOS Desmoide France
11. Germany: Deutsche Sarkom-Stiftung/German Sarcoma Foundation
12. Germany: SOS-Desmoid
13. Germany: SMARCB1 e.V.
14. Germany: Ultra Rare Sarcoma e.V.
15. Hungary: Érintettek Association
16. Hungary: Recovering Together Association/Gyógyulj Velünk Egyesület
17. India: Friends of Max GIST
18. India: SPANDAN (part of V Care)
19. India: DigiSwasthya Foundation
20. India: Sachin Sarcoma Society
21. Ireland: Sarcoma Cancer Ireland
22. Israel: Israeli GIST Patients Organisation
23. Italy: A.I.G. Associazione Italiana GIST
24. Italy: Italian Desmoid Foundation
25. Italy: Fondazione Paola Gonzato-Rete Sarcoma ETS
26. Italy: MC4 in corsa per la vita!
27. Italy: Orchestra per la Vita Onlus
28. Japan: GISTERS
29. Kenya: Henzo Kenya
30. Macedonia: GIST Patient Group Macedonia
31. Moldova: Viața Continuă – Oncology Patients Association
32. Netherlands: Patientenplatform Sarcomen
33. Netherlands: Chordoma Foundation Europe
34. New Zealand: The Sarcoma Foundation New Zealand
35. Norway: Sarkomer Norway
36. Poland: Stow. Pomocy Chorym Na GIST
37. Poland: Stowarzyszenie Pomocy Chorym na Mięsaki i Czerniaki SARCOMA
38. Romania: HomeCare Association
39. South America: Alianza GIST
40. South Africa: Campaigning for Cancer
41. Spain: FUNDACIÓN MARI PAZ JIMENEZ CASADO
42. Spain: ASARGA – Association of Sarcomas Assistance Groups
43. Sweden: GIST Sverige
44. Sweden: Sarkomföreningen
45. Sweden: Barncancerfonden – The Swedish Childhood Cancer Fund 
46. Switzerland: Swiss GIST Group
47. Switzerland: Shane Osteosarcoma Association
48. Tanzania: Feliciana Mshanga Memorial Cancer Foundation (FMMCF)
49. Turkey: Genç Birikim Derneği & Youth Accumulation Association
50. Uganda: Uganda Alliance of Patients’ Organizations (UAPO)
51. UK: Bone Cancer Research Trust
52. UK: Desmoid Fibromatosis UK Patients & Caregivers
53. UK: EHE Rare Cancer Charity
54. UK: George Pantziarka TP53 Trust (GPTP53)
55. UK: GIST Cancer UK and PAWS GIST
56. UK: Sarcoma UK
57. UK: The Boom Foundation
58. UK: Leiomyosarcoma Research UK
59. UK: Edward Showler Foundation
60. USA: Chondrosarcoma Foundation
61. USA: Chordoma Foundation
62. USA: Desmoid Tumour Research Foundation
63. USA: GSI - GIST Support International
64. USA: Make IT Better Agents - pediatric osteosarcoma nonprofit
65. USA: National Leiomyosarcoma Foundation
66. USA: Sarcoma Strong
67. USA & International: The Life Raft Group
    - GIST (Gastrointestinal Stromal Tumor)
    - TGCT Support (Tenosynovial Giant Cell Tumor)
    - GCT Support (Giant Cell Tumor)
    - Liposarcoma Support Network 
68. USA: Sarcoma Alliance
69. USA: Sarcoma Coalition
70. USA: Sarcoma Foundation of America
71. USA: Northwest Sarcoma Foundation
72. USA: Rein in Sarcoma
73. USA: Clear Cell Sarcoma Foundation
74. USA: The EHE Foundation
75. USA: Pittsburgh Cure Sarcoma 
76. USA: Synovial Sarcoma Foundation
    
77. USA: The Bardo Foundation 
78. USA: The Desmoid Project
79. USA: The Ewing Sarcoma Institute
80. USA: Rutledge Cancer Foundation
81. USA: Solitary Fibrous Tumor Foundation