Education and training is crucial to many of the 7 SPAGN strategic objectives and is the basis for SPAGN‘s work with its member groups and patient advocates. It is our goal to enable our member groups to improve in organizing their groups, in becoming active advocates for sarcoma patients in their own country and to be or become an active part of SPAGN

SPAGN therefore offers webinars with different focus: "Knowledge Spots" and "Coffee Chats". 


Knowledge Spot

The SPAGN Knowledge Spot webinars are a source of highly accessible information for well-informed, knowledgeable non-specialists - such as SPAGN's national patient advocacy groups.

Accessibility through...

  • ...streamlining and organizing information in ways that make the information clear and memorable
  • ...highlighting key takeaways at end of each presentation


Mark you calendars for our next Knowledge Spot: "Gamma Secretase Inhibitors - A new paradigm in Desmoid Tumors?"

December 1, 2022, 5pm CET / 11am ET / 9:30pm IST

Update on medical therapies in desmoid tumors, by Prof. Bernd Kasper, University Hospital of Mannheim, Germany, moderated by Christina Baumgarten, SOS Desmoid Germany, SPAGN Board Member

A joint event by SPAGN and the Sarcoma Unit @Mannheim Cancer Center (SarcoMa), Germany

Please use the following dial-in-details:

Join Zoom Meeting: https://us06web.zoom.us/j/86848960427?pwd=U2VZOTkwZnVXMXlFajdZWm9pT1MxQT09
Meeting ID: 868 4896 0427
Passcode: 122194

We are looking forward to welcoming many of you at the webinar!


Previous Knowledge Spots

Our previous “Knowledge Spot”-Webinars on “Medical/scientific highlights 2021” were held in February/March 2022 and reported from ESMO, CTOS and EMSOS 2021 for soft tissue sarcomas, bone sarcomas, GIST and desmoids. Find the recordings here or on our SPAGN Youtube Channel.

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Coffee Chat: An interactive webinar series for patient advocates

Expert patient advocates are an invaluable source of practical knowledge about advocacy work. We believe their hands-on experience and best practice examples should be shared with the wider sarcoma patient advocate community.

That’s why SPAGN launched Coffee Chat, a new webinar series launched in 2021.

Coffee Chat gives SPAGN Member Groups and their leadership teams the opportunity to learn from expert patient advocates in an interactive online setting. The advocacy-related topics together with the interactive nature of the sessions will ensure their practical relevance for Member Groups of all sizes and levels of experience.

Find the recordings of previous Coffee Chats here or on our SPAGN Youtube Channel.

And if you have any suggestions for topics or questions you'd like to hear about in a webinar, please get in touch on info@sarcoma-patients.org.


Photos: Andrew Neel & Frank Leuderalbert on Unsplash