Bone Sarcoma Alliance
The SPAGN - Bone Sarcoma Alliance is an informal partnership initiative composed of
- patient groups/organizations
- patient/parent advocates
- patient networks
The Bone Sarcoma Alliance operates under the motto 'working together, making a difference' as part of the SPAGN umbrella to:
![BSA_Logo_2023_RZ (002) BSA_Logo_2023_RZ (002)](https://www.sarcoma-patients.org/wp-content/uploads/BSA_Logo_2023_RZ-002.jpg)
- To amplify the voice of ALL bone sarcoma patients beyond the specific type of bone sarcoma as well as to implement collaborations among them
- Bring together the patients and advocates from the different bone sarcoma communities while continuing to work in each patient community for those areas which are disease-specific
- Share experiences and learn from each other
- Build “evidence” in order to accelerate advances in patient treatments and lives
- Collaborate more effectively
- To better engage with professionals on issues that are common to all bone sarcomas
Different diseases, but common concerns:
- Problems with access to treatment
- Late diagnosis
- Quality of life
- Late effects from treatment
- Lack of research
- Lack of support
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