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Working together,
making a difference.

SPAGN_Logo_2022_web2

Working together, making a difference.

SPAGN Facebook SPAGN Instagram SPAGN Twitter SPAGN LinkedIn SPAGN YouTube
SPAGN_Logo_2022_web2

Working together, making a difference.

SPAGN Facebook SPAGN Instagram SPAGN Twitter SPAGN LinkedIn SPAGN YouTube
SPAGN Facebook SPAGN Instagram SPAGN Twitter SPAGN LinkedIn SPAGN YouTube
  • SPAGN & Members
    • About SPAGN
    • Board of Directors & Team
    • SPAGN Member Groups
    • Networking
      • CTOS-SPAGN Collaboration
    • Funding
    • Contact
  • Events & Projects
    • Annual Conferences
      • Annual Conference 2023
    • New Horizons GIST
      • New Horizons GIST 2023
      • New Horizons GIST 2020
    • Webinars
      • Previous Webinars
    • Advocacy in Action Award
    • Expert/Patient Roundtables
    • Research Projects & Surveys
  • Advocacy & Tools
    • Resources
  • Experts & Research
    • Sarcoma Centers
    • Research Networks
    • SPAGN publications
    • Study Registry
    • Guidelines
  • Sarcoma Facts & Figures
    • Soft Tissue Sarcoma
      • Signs and symptoms
      • Diagnosis
      • Treatment
      • Follow up
      • Research
      • Soft Tissue Sarcoma Subtypes
    • Bone sarcomas
      • Signs and Symptoms
      • Diagnosis
      • Treatment
      • Follow up
      • Research
      • Bone Cancer Subtypes
    • GIST
      • Signs and symptoms
      • Diagnosis
      • Treatment
      • Follow up
      • Research
    • Desmoids
      • Signs and Symptoms
      • Diagnosis
      • Treatment
      • Follow up
      • Research
  • Blog & News
    • Blog
    • News
  • Newsletter
  • Contact
  • Legal Notice
  • Privacy Policy
  • Copyright / Disclaimer
  • Downloads
    • Annual Conferences
    • Guidelines
    • Publications
  • SPAGN & Members
    • About SPAGN
    • Board of Directors & Team
    • SPAGN Member Groups
    • Networking
      • CTOS-SPAGN Collaboration
    • Funding
    • Contact
  • Events & Projects
    • Annual Conferences
      • Annual Conference 2023
    • New Horizons GIST
      • New Horizons GIST 2023
      • New Horizons GIST 2020
    • Webinars
      • Previous Webinars
    • Advocacy in Action Award
    • Expert/Patient Roundtables
    • Research Projects & Surveys
  • Advocacy & Tools
    • Resources
  • Experts & Research
    • Sarcoma Centers
    • Research Networks
    • SPAGN publications
    • Study Registry
    • Guidelines
  • Sarcoma Facts & Figures
    • Soft Tissue Sarcoma
      • Signs and symptoms
      • Diagnosis
      • Treatment
      • Follow up
      • Research
      • Soft Tissue Sarcoma Subtypes
    • Bone sarcomas
      • Signs and Symptoms
      • Diagnosis
      • Treatment
      • Follow up
      • Research
      • Bone Cancer Subtypes
    • GIST
      • Signs and symptoms
      • Diagnosis
      • Treatment
      • Follow up
      • Research
    • Desmoids
      • Signs and Symptoms
      • Diagnosis
      • Treatment
      • Follow up
      • Research
  • Blog & News
    • Blog
    • News
  • Newsletter
  • Contact
  • Legal Notice
  • Privacy Policy
  • Copyright / Disclaimer
  • Downloads
    • Annual Conferences
    • Guidelines
    • Publications

Resources

Bone Cancer

  • ESMO Bone Cancer Youth Brochure
  • Sarcoma UK - Understanding Bone Sarcoma Patient Guide
  • BCRT UK - Primary Bone Cancer Factsheet
  • Sarcoma Guide in Italian (March 2018)

Soft Tissue Sarcoma

  • ESMO Patient Guide on Soft Tissue Sarcomas (different languages)
  • Sarcoma Guide in Italian (March 2018)

Chordoma

  • Chordoma Foundation's Expert Recommendations for the Diagnosis and Treatment of Chordoma booklet
  • Chordoma Foundation's Expert Recommendations for the Diagnosis and Treatment of Chordoma booklet (Spanish)
  • Chordoma Foundation's Expert Recommendations for the Diagnosis and Treatment of Chordoma booklet (Italian)
  • Chordoma Foundation's Expert Recommendations for the Diagnosis and Treatment of Chordoma booklet (Dutch)
  • Chordoma Foundation's Expert Recommendations for the Diagnosis and Treatment of Chordoma booklet (Chinese/Mandarin)

Other topics

  •  Understanding genomic testing & what it could mean for those with sarcoma.
    This excellent description reproduced above was developed by Bayer and is reproduced with their permission. The SPAEN Board, at their sole discretion, are happy to carry good quality patient information from any source, with permission.
  • Genomic testing for sarcoma by Sarcoma UK (England-specific)

© 2023 Sarcoma Patient Advocacy Global Network e.V./Assoc.

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