Privacy Policy

We are pleased to welcome you to our website

In the context of our privacy policy, we would like to provide you with an overview of the technical data which are collected and which, in a broader sense, may have personal relevance and the direct personal data that we receive from you and how we handle it.
Should questions remain unanswered or were answered only insufficiently, we are happy to address them. For questions about data processing, please contact us via the following email address: info(at)

Responsible in accordance with the General Data Protection Regulation:

Official registered address:
Sarcoma Patient Global Advocacy Network e.V./Assoc.
Mr. Markus Wartenberg
Untergasse 36
D-61200 Wölfersheim / Germany

email: info(at)

Entering our website (technical data with personal reference):

To provide the service of a web service –  the presentation of the content of our website in the browser on your computer, tablet or smartphone – temporary specific technical details must be stored by you.

The following data is logged:

  • IP address
  • Timestamp of access,
  • Requested resource
  • Status
  • Transferred amount of data and
  • Duration of data transmission
  • Origin of your page request
  • Name and version of the browser software

The collected data are recorded in so-called server log files. The collected data allow statistical evaluations that ensure the proper function of the website.

Should we obtain concrete indications for unlawful use, we will also process the collected data (as described above) for misuse detection and tracking.

Usually, these server logs are deleted after 8 days.

This expanded analysis of technical data with reference to individuals is reflected in Art. 6 para. 1 lit. f DSGVO.

Transferred personal data

We only store the personal information that you provide us with. (Art. 6 para. 1 lit. a GDPR)

We only collect data that are necessary to provide you with the service (eg newsletter, access to a forum, etc.) your requested or answer to your inquirey (e.g. via our contact form or by email, etc.).

The forms for registration or contact are sperated into necessary information (marked as “required”) and voluntary information.
The personal data provided in this context will exclusively be used for the purpose intended by you.

If you get in touch with us

If you contact us via our website, your details will be stored and used only to process and respond to your request.
This data will not be used for other purposes and deleted upon fulfillment of the purpose.

You would like to receive regular information (newsletter)

In order for us to be able to send you the newsletter, we need a valid email address from you. The registration takes place in two steps (double-opt-in):
You access our website at the appropriate form and enter your email address.
You will then receive a validation email from us. The link contained must be clicked on in order to complete the registration.
The information you provide and the validity of the registration will be used exclusively for the service “Newsletter”.

You want to join a forum and / or leave comments:

For certain areas on our website you need to register. With the process of registration we receive from you some personal data, which we use exclusively for the service forum / comment / personal area.
As evidence of consent to the processing of the personal data provided, the date, time and IP address are stored with the registration.

In the personal area you also have the opportunity to change your own data or delete it.
Forum posts and comments are published with your chosen username and posting date.

You want subscriptions to your comments:

You have the option to subscribe to both the entire website and follow-up comments on your post. You will receive an email to confirm your email address. Besides this, no further data will be collected. You can unsubscribe at any time.

 We use cookies on our website:
This website uses cookies to make your website visit as pleasant as possible. A cookie is a small piece of information that is stored locally on your computer.
We use two categories of cookies:
a) technically necessary cookies

Each time you visit our website, a unique session number is assigned for this call. This cookie should help that the communication between web server and your browser works smoothly and z. For example, registration, registration and ordering processes are processed correctly.
b) Function cookies
In order to be able to save certain preferences you have made on our website, we use functional cookies. These presets will be recalled the next time you visit our website and allow you to: For example, you can quickly navigate to specific content on our website or remember login information for closed areas on the site.
Preferences in the browser:
You have the option to prevent the storage of cookies on your device by making the appropriate settings in your browser. These presets (keyword “Do not Track” etc.) are respected by us in any case
However, you may not be able to access all features of this website without restriction if your browser does not allow cookies.
Furthermore, we do not use any methods that include automated decision making including profiling i. P. V. Provide or support Article 22 (1) and (4) GDPR.

We also do not rely on third party data sources to identify our visitors.

Use of PlugIns Social Networks:

In order to continue to offer you the opportunity to provide feedback to social media regarding our website, we use social media buttons from the shariff project of c’t Computerzeitung.

In particular, the usual share buttons will be replaced by the following providers:

  • Facebook (Facebook Inc., 1601 S. California Ave., Palo Alto, CA 94304 USA)
  • Twitter (Twitter Inc., 1355 Market St., Suite 900, San Francisco, CA 94103, USA)
  • Google+ (Google Inc, 1600 Amphitheater Parkway, Mountain View, CA 94043, USA)
  • YouTube (YouTube, LLC, 901 Cherry Ave., San Bruno, CA 94066, USA)
  • Xing (XING AG, Gänsemarkt 43, 20354 Hamburg, Germany)
  • LinkedIn (LinkedIn Ireland Unlimited Company, Wilton Place, Dublin 2, Ireland)

The following text was taken directly from the c’t website on 27.11.2014, to explain how the Shariff plug-ins work:
“The usual social media buttons transfer the user data to Facebook & Co. for every page view and provide the social networks with exact information about their surfing behavior (user tracking). You do not have to be logged in to be a member of the network. On the other hand, a Shariff button does not establish direct contact between social network and visitors until the latter actively clicks on the share button.

This way, Shariff prevents you from leaving a digital trail on every page you visit and improves privacy. Then you can like, + 1en or tweet – the social network does not get more information.
Thanks to Shariff, the display of “Likes” comes from the operator of the page with the buttons. Because Shariff is involved by the webmaster, you do not have to do anything else as a visitor. “

Use of videos from YouTube and Vimeo:

In part, we use third-party servers in our offering to play videos of events, training, or to better illustrate issues.
The third-party vendors are:
(YouTube, LLC, 901 Cherry Ave., San Bruno, CA 94066, USA)
(Vimeo, LLC, 555 West 18th Street, NY, New York 10011, USA)
When you visit a page that has a video attached to it, it will connect to the servers of YouTube or Vimeo. It tells you which page you are calling. At the start of the video, cookies are used, which provide information about your user behavior.

You can prevent this by setting the appropriate settings in your browser to block cookies.

Google also offers the option of permanently installing a plug-in for the most popular browsers, which prevent tracking by Google Analytics. To do this, go to the following page:

Duration of storage of personal data:

Your personal data will be stored by us as long as we answer a request or you use the appropriate service / service. With a notice or notice from you, your personal data, if possible, will be deleted immediately.
Otherwise, the data will be disabled and, if technically possible, routinely deleted or anonymized.
Irrespective of this, other legal requirements may require that personal data be retained for a longer period of time.

Duration of saving posts, comments, articles on our website:
Posts, comments, articles and the like published on our site will be retained after your departure. However, certain characteristics that allow a conclusion to the person are withdrawn or anonymized by other measures.

Transfer of personal data to third parties:

We do not share your data.

Data processing outside the European Union:
The servers used for the internet presence are all located in the Federal Republic of Germany.

Your rights regarding the processing of personal data:


You can at any time exercise your right to request information from us, which personal data we have stored by you (Art. 15 GDPR).

Right to correct incorrect data:

If personal data have been incorrectly collected from you or are no longer correct, we will immediately comply with your right of correction
(Art. 16 GDPR).

Right to cancellation:

You have the right to ask us for an immediate deletion if the personal data are no longer processed for the original purpose or are no longer necessary (Art. 17 GDPR).

You may also exercise the right to cancellation if you have revoked your consent and there is no other legal basis for the processing.

Right to restriction of processing and opposition to processing:
You have the right to request a limitation of the processing of your data (Art. 18 and Art. 21 (1) GDPR)

Right to data portability:

If you want to take your data with you, you have the right of data portability. We will make the relevant data available to you in a standard, structured and machine-readable format or hand it over directly to another person responsible (Art. 20 GDPR)

Use the email address to tell us your request:

Your right of appeal to the competent supervisory authority:
If all previous attempts have not brought a satisfactory solution to your concern, then you have the right to complain to the regulatory authority responsible for us:
Data protection officer of Hessen :

Prof. Dr. Michael Ronellenfitsch
Postfach 31 6365021 Wiesbaden


Gustav-Stresemann-Ring 165189 Wiesbaden