Where the global sarcoma community comes together

Every year since 2010, SPAEN/SPAGN has opened its doors to the people who make progress in sarcoma possible. Patient advocates from sarcoma, GIST and desmoid groups sit alongside leading experts, researchers and industry partners to learn, challenge each other and leave with new ideas and new friendships.

80-100 people. 25+ countries. Three days.

Our in-person conferences consistently bring together this mix of patient advocates, sarcoma specialists and pharmaceutical representatives. Over three days, we dig into the latest developments, sharpen our advocacy and build the skills that help patient organisations grow stronger back home.

A journey across continents

2025, Washington, D.C. Our first conference outside Europe was a milestone for SPAGN and a clear statement of our commitment to the global sarcoma community.

2026, Stockholm, Sweden. The conference returned to Europe, hosted at the prestigious Karolinska University Hospital, with accommodation at The Elite Hotel Carolina Tower. It was a joy to welcome our community together again for a gathering that deepened collaboration and support across our international network.

2027, Toronto, Canada. The journey continues. Join us at The Hospital for Sick Children (SickKids) and the Chelsea Hotel, Toronto.