SPAEN/SPAGN Annual Conferences

Since 2010, SPAEN/SPAGN has been dedicated to organizing annual conferences that unite sarcoma, GIST, and desmoid patient groups with experts, researchers, and industry leaders. These in-person events have consistently brought together 80-100 participants from over 25 countries, including patient advocates, leading sarcoma experts, and pharmaceutical representatives. Each three-day conference focuses on learning about latest developments, enhancing advocacy, and building capacity.

In 2025, we held our first-ever conference outside Europe — in Washington, D.C. This was a significant milestone in our journey and a strong reaffirmation of our commitment to the global sarcoma community.

In 2026, the Annual Conference returned to Europe and took place in Stockholm, Sweden, hosted in the prestigious Karolinska University Hospital and  The Elite Hotel Carolina Tower, Stockholm. We were delighted to welcome our community once again for an inspiring gathering that continued to strengthen collaboration and support across our international network.