Sarcoma Centers

Specialized centers with multi-disciplinary teams: A must in sarcomas!

What is a sarcoma centre?

Sarcomas are rare. It is therefore very important to find physicians who have experience with this disease. These are the criteria a sarcoma centre should fulfill:

  • A multidisciplinary sarcoma medical team consisting of all specialties including surgical (orthopaedic, general, reconstructive), medical oncologists, radiation oncologists (radiotherapy), diagnostic radiologists, pathologists, oncology nurses and rehabilitation services.
  • Access to thoracic surgical specialists (to treat lung metastases), intervention radiology (e.g. RFA), and genomic testing. Referral networks giving patients access to ILP (isolated limb perfusion) and proton beam therapy.
  • Sarcoma conferences (e.g. Tumor Board), where sarcoma group members meet regularly to discuss patient care issues.
  • Patient enrollment in clinical trials.
  • Links to a sarcoma-oriented medical organization, such as the Connective Tissue Oncology Society (CTOS).

Add-On:

  • Publications concerning sarcoma in peer-reviewed journals.
  • Strong support personnel such as social workers, psychologists and psychiatrists.
  • Sarcoma support group desired.

Find more information about the importance of sarcoma centres here or watch our video on Youtube or at the top of this page.

 

Where can I find a sarcoma centre?

SPAEN is in the process of setting up a list of sarcoma centers or centers with sarcoma expertise per country.
Please note: The criteria for sarcoma centers differ sometimes significantly from country to country. In many countries, no official certification process is in place or currently undergoing. Please also know, that this list does not claim to be exhaustive and is work in progress. If you cannot find a sarcoma center in your country, please get in touch with your national patient advocacy group.

 

Australia
(and New Zealand)  
Austria
Belgium
Denmark
Germany

Please be aware that a significant number of centers are currently undergoing certification process and might not be listed yet!

Finland
France
Iceland
Italy

Listed and provided by Rete Sarcoma Onlus

 

New Zealand
(and Australia)
Norway
Poland
  • Adults:
    Maria Sklodowska-Curie National Research Institute of Oncology (Warsaw)
    Head of Department of Soft Tissue/Bone Sarcoma and Melanoma
    Prof. Piotr Rutkowski, MD, PhD: piotr.rutkowski@pib-nio.pl
  • Children:
    Institute of Mother and Child (Warsaw)
    Head of the Department of Oncology and Surgical Oncology for Children and Youth
    Anna Raciborska, MD, PhD: klinika.onkologii@imid.med.pl
Portugal
Russia
  • Federal State Budgetary Institution
    «N.N. Blokhin Medical Research Center of Oncology» of the Ministry of Health of the Russian Federation (N.N.Blokhin NMRCO)
    Moscow (Russia)
    Anastasia Tararykova MD
    Soft Tissue Sarcoma and Bone Tumors Department
    Email: anastasiatararykova@gmail.com
Scandinavia
Spain CENTROS DE REFERENCIA (CSUR) /REFERRAL CENTERS (CSUR):

Services and Referral Sarcoma Unities for Children:

  • Complejo Hospitalario Regional Virgen del Rocío (Sevilla)
  • Hospital Universitario La Paz (Madrid)
    Gestora de casos de la Unidad de sarcomas. Marta Bodega, martabodega@gmail.com
  • Hospital Universitari Vall d'Hebron (Barcelona)
  • Hospital Universitari i Politècnic La Fe (Valencia)

Other sarcoma unities:

Switzerland

Listed and provided by Swiss Sarcoma

Sweden
The Netherlands
UK

Listed and provided by Sarcoma UK.

USA

More to come!