Sarcoma Awareness 2025: KNOW. ACT. ADVOCATE.
Empowered to Know, Ready to Act
Sarcoma Awareness Month takes place each year in July — a time when our global sarcoma community unites with a shared goal: to raise awareness of sarcoma and stand together in support of those affected by it.
Sarcomas are rare cancers with symptoms that often go unnoticed: a lump, swelling, persistent pain, or loss of mobility. These signs are frequently misread or dismissed, which can lead to delays in receiving the right care.
This July, SPAGN and our global member organizations invite you to be part of an international campaign focusing on helping people notice what’s not normal, trust their instincts, and speak up — while encouraging healthcare providers to listen, refer, and investigate when something doesn’t add up.
This month is more than a symbol — it’s a movement.
The theme, Know. Act. Advocate., highlights the power of awareness and community:
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Know your normal.
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Act on your symptoms.
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Advocate for answers.
When people trust their instincts, when families speak up, and when health professionals listen and respond, real change becomes possible. Recognizing the signs of sarcoma is the first step toward the right care — and everyone has a role to play.
How You Can Support Sarcoma Awareness Month: Know. Act. Advocate.
Sarcoma Awareness Month is a call to action—for every voice, every story, and every community. Whether you’re a patient, a loved one, a healthcare professional, or a dedicated advocate, you have a role to play. Together, we can drive change.
📣 Spread the Word
Raise your voice—and help others recognize the signs of sarcoma. Use our campaign materials to start conversations in your community or online.
🧡 Share Your Story
Stories spark recognition. Your journey can give others the courage to act and the strength to hope. Share your experience—or read others who’ve walked this path.
🌍 Join or Host an Event
Connection fuels awareness. Whether it’s a global webinar, a community walk, or an awareness day—every gathering matters.
👩⚕️ Engage Medical Professionals
Early recognition saves lives. Help us reach healthcare providers and encourage them to take action.
Early and accurate diagnosis of sarcoma is vital. When caught early, treatment is often less aggressive and outcomes improve. Delays or misdiagnoses, however, can lead to disease progression, fewer treatment options, and lower survival.
Getting the correct subtype is also essential—wrong or overly aggressive treatments can be ineffective or harmful. Yet, diagnostic delays and errors remain common, and current data is fragmented, often limited to certain countries, subtypes, or parts of the diagnostic process.
This global survey was created to address that gap. By gathering real-world experiences from sarcoma patients, caregivers, and families, we aim to better understand diagnostic challenges and regional disparities. The goal is to inform efforts toward earlier detection, greater awareness, and more equitable access to expert care. Data analysis is ongoing.