SPAGN publications

Setting the international research agenda for sarcoma together with patients and carers: first results of the Sarcoma Patient EuroNet (SPAEN) priority setting partnership
Published in ESMO Open, June 2022
Global Patient Involvement in Sarcoma Care - A Collaborative Initiative of the Connective Tissue Oncology Society (CTOS) & Sarcoma Patients EuroNet (SPAEN)
Published in Cancers, February 2022
Unmet Medical Needs and Future Perspectives for Leiomyosarcoma Patients — A Position Paper from the National LeioMyoSarcoma Foundation (NLMSF) and Sarcoma Patients EuroNet (SPAEN)
Published in Cancers, February 2021
The Management of Desmoid Tumors: A joint global evidence-based consensus guideline approach for adult and pediatric patients
by the Desmoid Working Group, published in the "European Journal of Cancer" in October 2019
Incorporating the Patient Voice in Sarcoma Research: How Can We Assess Health-Related Quality of Life in This Heterogeneous Group of Patients? A Study Protocol 
Dide den Hollander, Marco Fiore, Javier Martin-Broto, Bernd Kasper, Antonio Casado Herraez, Dagmara Kulis, Ioanna Nixon, Samantha C. Sodergren, Martin Eichler, Winan J. van Houdt, Ingrid M. E. Desar, Isabelle Ray-Coquard, Claire Piccinin, Hanna Kosela-Paterczyk, Aisha Miah, Leopold Hentschel, Susanne Singer, Roger Wilson, Winette T. A. van der Graaf and Olga Husson
Cancers 2021, 13(1), 1;
Published: 22 December 2020
The Challenge of Sarcomas - the Patient Advocacy Group Perspective
Roger Wilson
Clinical Sarcoma Research. DOI: 10.1186/s13569-019-0121-6
Working to improve the management of sarcoma patients across Europe: a policy checklist
Bernd Kasper, Estelle Lecointe-Artzner, Suzanne Wait, Shannon Boldon, Roger Wilson, Alessandro Gronchi, Claudia Valverde, Mikael Eriksson, Sarah Dumont, Nora Drove, Athanasia Kanli and Markus Wartenberg
BMCCancer (2018) 18:424