Posts Tagged ‘sarcoma’
ROGER EXPLORES… the evolution of clinical trials (Part Two)
While great advances are made in the field of clinical trials, there are still considerable bottlenecks for sarcoma patients to participate in studies. Yet, new approaches may help. Roger Wilson takes a closer look for us.
Read MoreFDA approves pimicotinib for symptomatic tenosynovial giant cell tumor
A new milestone in the treatment of tenosynovial giant cell tumour (TGCT): the US Food and Drug Administration (FDA) has approved pimicotinib (Pimjetmi) for adults with symptomatic TGCT for whom surgery may cause worsening functional limitations or severe complications. The approval, announced on 10 November 2026, marks an important development for the TGCT community and…
Read MoreESMO Congress 2026: Selected Sarcoma Research Highlights
SPAGN Science Translator | Congress Report Authors: Kathrin Schuster and Bernd Kasper The European Society for Medical Oncology (ESMO) is one of the leading professional organisations in cancer care. Its annual congress is among the most important international oncology meetings, bringing together researchers and clinicians to present and discuss new findings that may influence future…
Read MoreOne goal, many solutions: A patient’s view on ISOLS
Participating at an international congress on limb-saving surgery was overwhelming yet eye-opening for Stéphanie Anzellotti. She is a patient advocate at Cum Cura in Belgium and mother of a child who suffers from osteosarcoma. Stéphanie shares what she is taking home as her key learnings from this experts’ meeting.
Read MoreROGER EXPLORES… the evolution of clinical trials
Exciting progress is made in the field of clinical trials, finds Roger Wilson. He has participated in several exercises of clinical trial design as a patient advocate. Roger explains the what’s what of the latest developments.
Read MorePatient pathways must improve in Bulgaria – First national campaign on sarcoma shows how
The bitter experience of not finding the information they needed when their son was diagnosed with osteosarcoma, made Lidiya Vitanova and her husband give a promise: No family in Bulgaria should navigate sarcoma alone. They founded Together Fighting Sarcoma and pulled off a national campaign which won the third place of SPAGN’s Advocacy in Action Awards.
Read MoreYour Poster @CTOS 2026
📣 Share Your Advocacy Work with the Global Sarcoma Community at CTOS 2026 FAQs: Showcase your work. Share your impact. Strengthen the patient voice. SPAGN invites sarcoma patient advocacy organizations from around the world to showcase their work as part of the Patient Advocacy Poster Wall at CTOS 2026. The Poster Wall is an opportunity…
Read MoreEvery patient matters: Building the future of synovial sarcoma research
This year’s winner of the first prize of SPAGN’s Advocacy in Action Awards is the Synovial Sarcoma Foundation based in the US. With a mission to advance research into this rare and aggressive cancer, they established a biorepository and registry to gather patient data. Synovial sarcoma patients worldwide can participate in this game-changing program. Julie Kramer, a synovial sarcoma survivor herself, gives us the background.
Read MoreFrom listening to action: Patients’ voices are shaping sarcoma care in Italy
Concrete improvements in sarcoma care in Italy are becoming a reality. The country’s first Sarcoma White Paper maps out 14 recommendations based on patients’ priorities, and its implementation has already begun. The Fondazione Paola Gonzato-Rete Sarcoma ETS, founded by Ornella Gonzato, was honored for this landmark initiative last May by SPAGN with an Advocacy in Action Award. Martina Gherlinzoni, a member of the Foundation’s Board of Directors, explains what makes their project so distinctive that it has become a major national news story in Italy.
Read MoreASCO 2026: Strong Momentum for Sarcoma Research
By Kathrin Schuster & Bernd Kasper, June 2026 ASCO 2026 was a remarkable year for sarcoma research: The program included several phase III trials, new targeted therapies, cell therapy approaches, translational research, and biomarker-driven strategies, reflecting the continued evolution of the field. Compared with previous years, sarcoma had a particularly visible presence at this year’s…
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