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Contact Information https://sarcomacoalition.us/ Contact Person Annie Achee, Member of the Sarcoma Coalition Steering CommitteeEmail: annieachee@aol.com Organisation Profile The Sarcoma Coalition is comprised of Patient Advocacy organizations and foundations that represent a cross-section of sarcoma subtypes or a pan-sarcoma group. There is no individual membership.The membership of the Coalition has a designated representative to participate in the…

Sweden: Sarkomföreningen  Back to members Organisation Profile Sarkomföreningen, The Swedish Sarcoma Association, was founded in 2015 and offers support for sarcomapatients, relatives and survivors. Our mission is also to increase awareness about the disease. We are about 300 paying members. Sarkomföreningen is both a patient organisation and a support group. We provide information and campaign…

Contact Information Fondazione Paola Gonzato-Rete Sarcoma ETS Email: apaola.onlus@yahoo.it Web: www.retesarcoma.it Contact Person Ornella Gonzato, President Email: ornellagonzato@yahoo.it Paolo Casali, Chairman Email: paolo.casali@istitutotumori.mi.it Organisation Profile Trust Paola Gonzato-Rete Sarcoma Onlus is the new denomination of Associazione Paola per i tumori muscolo-scheletrici, which was founded in 2008 by Ornella Gonzato in Udine, in memory of her…

Contact Information Sarcoma Foundation of America 9884 Main Street Damascus, Maryland 20872 Tel: ( +1) 301-253-8687 Fax: ( +1) 301-253-8690Email:  info@curesarcoma.org  Web: http://www.curesarcoma.org/ Organisation Profile The mission of the Sarcoma Foundation of America (SFA) is to advocate for increased research to find new and better therapies with which to treat patients with Sarcoma. The organization…

Contact Information Erik Hausoul Sarcoma Foundation Post Office Box 154Richmond NSW  2753Australia Tel.: When calling from Australia please use: (02) 45612012 Tel.: When calling from outside Australia please use: +61 2 4561 2012Email: info@erikhausoulsarcomafoundation.comWeb: http://erikhausoulsarcomafoundation.webs.com/   Organisation Profile The Vision of the Erik Hausoul Sarcoma Foundation is to reduce the number of deaths resulting from…

Contact Information GIST Sverige  Email: gistcancer@telia.com    

Contact Information Associazione ONLUS: Il pensatore: Matteo Amitrano Email: info@ilpensatoreonlus.itWeb: http://www.ilpensatoreonlus.it/    Organisation Profile  The mission of the group is to stimulate research and support of young patients (children and adolenscents) with osteosarcomas.

Contact Information Sarcoma Alliance775 East Blithedale, #334Mill Valley, CA 94941Tel.: (415) 381-7236 Fax: (415) 381-7235Email: info@sarcomaalliance.orgWeb: www.sarcomalliance.org   Organisation ProfileThe Sarcoma Alliance strives to improve the lives of people affected by sarcoma through accurate diagnosis, improved access to care, guidance, education and support. Suzanne Leider founded the Sarcoma Alliance in 1999 in the living room…

Contact Information Henzo KenyaP.O. BOX 1008 – 00517 NAIROBI, KENYATel: +254 733-963 242Website: www.henzokenya.or.keEmail: info@henzokenya.or.ke SPAEN Contact Ferdinand Mwangura (Chairman)Email: chairman@henzokenya.or.ke Group Profile Henzo Kenya was an idea realised by three patients and two volunteers out of a need for emotional support in June 2007. In 2009 it was registered as a support group –…