South America: Alianza GIST
Contact Information
Alianza GIST
Av. Cristobal Colon 4198, Dep 606, Las Condes,
Santgiago, CHILE
Tel.: 56 2 2207 5556
Email: alianzagist@gmail.com
www.alianzagist.net
Contact Person
Piga Fernandez
Email: pfernandez@liferaftgroup.org
Organisation Profile
Alianza GIST is an alliance of Spanish speaking GIST patient advocacy groups and patients advocates from Argentina, Brazil, Bolivia, Chile, Colombia, Peru, Venezuela, Costa Rica, Nicaragua, Guatemala, El Salvador, Dominican Republic, Mexico and Spain.
Its main objectives are:
- Educate and inform patients as well as the health professional community
- Advocate for access to treatments
- Support local patient advocacy groups and help to create new ones
- Collaborate with the medical community
- Collaborate with research
Organisation Profile (national language)
Una asociaci贸n de defensores de los pacientes representando a quince pa铆ses de habla hispana que se han unido para crear la Iniciativa Alianza GIST de Am茅rica Latina y Espa帽a;
Cuyos objetivos principales son:
- Mejorar el conocimiento de los pacientes y los m茅dicos.
- Permitir que los pacientes accedan a tratamientos y recursos adecuados.
- Apoyar a las organizaciones locales de apoyo al paciente, incluyendo la creaci贸n de otras nuevas.
- Fomentar la colaboraci贸n y coordinaci贸n con la comunidad m茅dica y apoyar la investigaci贸n.
Which are the Argentnean Members?
Hi Edith, the Agentinian member of Alianza GIST ist APEHI – have a look here: http://www.apehi.org/index.php
But to our knowledge, there’s no patient group dedicated to sarcomas in Argentina.