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Contact Information “PAWS-GIST” (Paediatric Adolescent Wildtype Syndromic-GIST)Pennysfield Barn, Dauntsey, Chippenham, Wiltshire, SN15 4HL, UK Telephone Number incl. country code: Patient & Carer Helpline: +44 300 400 0000Website: www.gistsupportuk.com & www.pawsgistclinic.org SPAEN Contact: Jayne Bressington – Vice Chair – jayneandkim@aol.com   Organisation Profile GIST Support UK are a network of patients and carers affected by GIST,…

Contact Information   Le Ali Onlus Web: http://www.lealionlus.org/Email: info@lealionlus.org                   COO – Centro di Oncologia Ortopedica – Brescia: Web: www.coobs.itEmail: ippolito@coobs.it    Contact Person Le Ali Onlus President: Francesca Piccolo:  frapiccol@libero.it COO-BS (Centro di Oncologia Ortopedica – Brescia): Dr. V. Ippolito: ippolito@coobs.itTel.: (+39) 030.3995393   Organisation Profile…

Contact Information The Karen Wyckoff Rein in Sarcoma Foundation (KWRISF)3312 Richmond Avenue Shoreview, Minnesota, 55126-3842Email: info@reininsarcoma.orgWeb: http://www.reininsarcoma.org Organisation ProfileThe Karen Wyckoff Rein in Sarcoma Foundation (KWRISF) is a resource for families touched by sarcomas, an uncommon and often lethal group of bone and soft tissue cancers that may strike children and younger adults, leaving an…

Contact Information The Sarah Grace Sarcoma Foundation Email: gm@kicksarcoma.org.au Website: www.kicksarcoma.org.au   Contact Person Dr Grace Moshi (Founder and Director)Email: findcureforsarcoma@gmail.com   Organisation Profile The Sarah-Grace Sarcoma Foundation advocates for increased research to find new and better therapies for treating sarcoma patients. The Foundation aims to spread excellence in the field of sarcoma and improve…

Contact Information https://sarcomacoalition.us/ Contact Person Annie Achee, Member of the Sarcoma Coalition Steering CommitteeEmail: annieachee@aol.com   Organisation Profile The Sarcoma Coalition is comprised of Patient Advocacy organizations and foundations that represent a cross-section of sarcoma subtypes or a pan-sarcoma group. There is no individual membership.The membership of the Coalition has a designated representative to participate…

Contact Information Swiss GIST Group/GIST Gruppe Schweiz/Groupe GIST Suisse Sterenweg 7, CH-6300 ZugTel. +41 (0)41 710 80 58Mail: gist@gist.chWeb: http://www.gist.ch/ Contact Person Martin Wettstein (President)Email: martin.wettstein@gist.ch Helga Meier Schnorf Email: gist@gist.ch    Organisation Profile On January 14, 2010 the GIST-Group of Switzerland was founded in accordance with the provisions of the Swiss Civil Code. The…

Contact Information LAM Italia ONLUS/Italian Association of LymphangioleiomyomatosisUfficio Postale33050 Pavia di UdineItaly Tel. +39 335 5380863Email: info@lam-italia.orgWeb: http://www.lam-italia.org   Contact Person Iris Bassi (President)Email: info@lam-italia.org   Organisation Profile  LAM Italy aims to support an effective treatment and cure of lymphangioleiomyomatosis (LAM). Main objectives are: Raise funds to support scientific research;   Promote the training of…

Contact Information The Desmoid Tumour Research FoundationP.O. Box 273Suffern, New York 10901Email: info@dtrf.orgWeb:  http://www.dtrf.org   Contact Person Anna Grenne, PhD, DTRF Research Director Email: anna@dtrf.org   Organisation Profile The Desmoid Tumor Research Foundation (DTRF) was founded in September, 2005.  Mission The Desmoid Tumor Research Foundation (DTRF) seeks to advance the science related to desmoid tumors…

Contact Information Hannah’s Chance Sarcoma Foundation C/- The Wesley Research Institute Level 8 East Wing, The Wesley Hospital 451 Coronation Drive Auchenflower Qld 4066 Postal Address PO Box 499 Toowong Qld 4066 Tel: (07) 3721 1777  Fax: (07) 3721 1590 Email: hannahschance@wesleyresearch.com.auWeb: http://www.hannahschancefoundation.org.au/   Organisation Profile