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France: Info Sarcomes
France: Info Sarcomes Back to members Organisation Profile Info Sarcomes was created in 2009 and follows the ambition to develop knowledge on sarcomas in order to harmonize and improve the quality of care in France. Objectives: Inform patients and carers Promote the expertise of the French Sarcoma expert group Facilitate access to appropriate care Support…
Read MoreUK: GIST Cancer UK and PAWS GIST
Contact Information Patient Group Name: GIST Cancer UK & PAWS-GISTPennysfield Barn, Dauntsey, Chippenham, Wiltshire, SN15 4HL, UK Patient & Carer Helpline: +44 300 400 0000Website: www.gistcancer.org.uk & www.pawsgistclinic.org SPAEN Contact: Jayne Bressington – Vice Chair – jayneb@gistcancer.org.uk Organisation Profile GIST Cancer UK are a network of patients and carers affected by GIST, sharing experience and…
Read MoreItaly: Soft Tissue Sarcoma People’s Organization
Contact Information Soft Tissue Sarcoma People’s OrganizationWeb: http://www.stsp.org/ Organisation Profile Soft Tissue Sarcoma People’s Organization is a web-site with information, resources and personal experiences realting to soft tissue sarcoma and contains two main areas: The first area of this web-site includes information about A.M.M. Eggermont MD’s Cancer Scientific activities. It’s a tribute to his…
Read MoreFrance: A.F.P.G. “Ensemble contre le GIST”
Contact Information Association Française des Patients du GIST « Ensemble contre le GIST »Email: info@ensemblecontrelegist.comWeb: http://www.ensemblecontrelegist.com Contact Person Estelle Lecointe (President) Organisation Profile A.F.P.G. « Ensemble contre le GIST » was created in October 2005, several months after Estelle’s own GIST diagnosis. The main objectives of this organization consist in providing patients, caregivers…
Read MoreCanada: The Sarcoma Cancer Foundation of Canada
Contact Information Sarcoma Cancer Foundation of Canada374 Lippincott StreetToronto, ONM5S 2P7 Email: info@sarcomacancer.caWeb: www.sarcomacancer.ca Organisation Profile The Sarcoma Cancer Foundation of Canada (SCFC) is Canada’s national organization dedicated to providing patient support and education while working with Canada’s leading research institutions to eradicate the disease.The SCFC was founded in 2010 in memory of Vera Arajs…
Read MoreUSA: Chondrosarcoma Foundation
Contact Information Chondrosarcoma Foundation Phone: 301-352-3042Email: info@csfshayna.org Contact Person Jeff Kramer, PresidentEmail: kcam@his.com Organisation Profile The purpose of CS Foundation is to educate the public about Chondrosarcoma; support and advocate for patients and families that are suffering from this disease, and advocate to improve the treatment and care for these patients. CS Foundation also strives…
Read MoreFinland: Finnish GIST and Sarcoma Patient Network
Finland: Finnish GIST and Sarcoma Patient Network Back to members Organisation Profile Sarcoma network The network is a group for adult Sarcoma patients and their family members. The peer-to-peer network operates in a closed Facebook group. The group provides you a place where you can find peer support, talk about the illness and its treatments,…
Read MoreUK: Chordoma UK
Contact Information Web: http://www.chordoma-uk.org c/o UCL Cancer Institute Research Trust72 Huntley Street, London, WC1E 6BT Tel ++44 (0)20 7679 6325 Chordoma UK is administered as part of the UCL Cancer Institute Research Trust, a registered charity (RCN 1135220) Contact Person Gerald Fitz-Gibbon (Founder), Susan Fitz-Gibbon (Founder and diagnosed with Chordoma 2007), Richard Sutton-Mattocks (Chairman…
Read MoreItaly: RUKIJE un raggio di sole – Associazione pazienti oncologici dell’aparato muscolo-scheletrico
Contact Information RUKIJE un raggio di sole – Associazione pazienti oncologici dell’aparato muscolo-scheletricoVia Fontanelle di Sant’Apollaria, 16 cap 00039 Zagarolo (Roma)Italy Email: info@rukije.orgWeb: www.rukije.org Contact Person Monica Morelli (President) Email: monicamorelli@rukije.org Organisation Profile The activities of the association are addressed to people who suffer from cancer in the musculoskeletal system.
Read MoreBelgium: Contactgroep GIST Nederland – België
Contact Information Belgium Contact Groep GIST Contact Person Kris HeymanEmail: voorzitter@contactgroepgist.be
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