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Hungary: Recovering Together Association/Gyógyulj Velünk Egyesület
Contact Information Recovering Together Association/Gyógyulj Velünk Egyesület (RTA/GYVE)Szent Laszlo Korhaz (Hospital), Tuzmadar Haz1097, BudapestHungary+36309227797Email: info@gyve.huWeb: www.gyve.hu Facebook: https://www.facebook.com/egyesulet.gyogyuljvelunk Youtube: https://www.youtube.com/channel/UC-N4WM4D81cn3NwuuCyK0JA Contact Person Zoltan Kalo (Patient & Board Member/ International relations)E-Mail: zoltankalo@yahoo.com+36706627092 Organisation Profile The Recovering Together Association was created to raise awareness of cancer and to support those affected in all life situations.…
Read MoreAustralia: Sock it to Sarcoma!
Australia: Sock it to Sarcoma! Back to members Member’s description Sock it to Sarcoma! is a volunteer run Foundation which helps to keep our administration costs as low as possible in order to fund our three core activities: Research Awareness Patient Support Sarcoma research through research scholarships including the annual Abbie Basson Sarcoma Research…
Read MoreUK: Guy Francis Bone Cancer Research Fund
Guy Francis Bone Cancer Research Fund Acomb House 23, Front Street Acomb York YO24 3BW Tel. +44 (0)1904 799151Fax +44 (0)1904 783765 Email: info@gfbonecancer.org.ukWeb: www.gfbonecancer.org.uk Contact Person Mike Francis, ChairmanEmail: mike.francis@gfbonecancer.org.uk Organisation Profile Founded in 2002 by teenage bone cancer patient Guy Francis shortly before his death, the Guy Francis Bone Cancer…
Read MoreNetherlands: Chordoma Foundation Europe
Email: nederland@chordomafoundation.orgWeb: http://www.chordoma.org Organisation Profile The Chordoma Foundation is a nonprofit organization dedicated to curing chordoma. Started in the USA in 2007, the Chordoma Foundation is still the only existing organization that unites and represents chordoma patients. Given the rarity of this disease, and the resultant need to leverage all available resources and partners –…
Read MoreFrance: SOS Desmoide France
Contact Information SOS Desmoide France 45, rue René La Combe, 49 100 Angers, FranceWeb: www.sos-desmoide.asso.frEmail : association.sos-desmoide@laposte.net Contact Person Karine le Bobinnec (President) Organisation Profile Its aim: like most PAGs, it is to develop the awareness of this disease, stimulate research, inform & support patients. It started in 1998. The core of our organisation…
Read MoreIndia: Friends of Max
Contact Information Friends of MaxSecom Business Centre, A Block Basement,Shiv Sagar Estate, Dr A B Road,Worli, Mumbai 400018, IndiaTel.: +91 22 66603320, +91 22 66603321 Website: www.friendsofmax.infoEmail: friendsofmax@gmail.com SPAEN Contact: Dr Nikhil Guhagarkar (SPAEN Board Member)Email: gdental99@gmail.com Group Profile Friends of Max (www.friendsofmax.info) is the Support Group arm of The Max Foundation in India and…
Read MoreLeiomyoSarcoma Support & Direct Research Foundation
Contact Information LeiomyoSarcoma Support & Direct Research FoundationPost Office Box 52697Tulsa, Oklahoma 74152Phone: 1-866-912-2730Email: 2lmsdr@gmail.comwww.LMSDR.org Facebook support group: https://www.facebook.com/groups/lmsdr/ Organisation Profile
Read MoreItaly: Italian Desmoid Foundation
Italy: Italian Desmoid Foundation Back to members Organisation Profile The Associazione Italiana Tumore Desmoide is the first Desmoid Foundation in Italy (ONLUS). It was founded in November 2018 through a chance encounter between Enrica Rossi and Giulia Personeni (both Desmoid patients) in alliance with the medical equipe of Dr. A. Gronchi A. and Dr. P.Casali…
Read MoreUK: GIST Cancer UK and PAWS GIST
Contact Information Patient Group Name: GIST Cancer UK & PAWS-GISTPennysfield Barn, Dauntsey, Chippenham, Wiltshire, SN15 4HL, UK Patient & Carer Helpline: +44 300 400 0000Website: www.gistcancer.org.uk & www.pawsgistclinic.org SPAEN Contact: Jayne Bressington – Vice Chair – jayneb@gistcancer.org.uk Organisation Profile GIST Cancer UK are a network of patients and carers affected by GIST, sharing experience and…
Read MoreItaly: Soft Tissue Sarcoma People’s Organization
Contact Information Soft Tissue Sarcoma People’s OrganizationWeb: http://www.stsp.org/ Organisation Profile Soft Tissue Sarcoma People’s Organization is a web-site with information, resources and personal experiences realting to soft tissue sarcoma and contains two main areas: The first area of this web-site includes information about A.M.M. Eggermont MD’s Cancer Scientific activities. It’s a tribute to his…
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