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Finland: Finnish GIST and Sarcoma Patient Network
Finland: Finnish GIST and Sarcoma Patient Network Back to members Organisation Profile Sarcoma network The network is a group for adult Sarcoma patients and their family members. The peer-to-peer network operates in a closed Facebook group. The group provides you a place where you can find peer support, talk about the illness and its treatments,…
Read MoreRomania: HomeCare Association
Contact Information HomeCare Association covering breast and gynaecologic cancers including sarcomas Email: grupsperantabrasov@yahoo.com Contact Person Simona Ene (President) Email: si_mi_ene@yahoo.com
Read MoreItaly: ASSOCIAZIONE “ALDO ARIENTI AMICI C.O.O – ONLUS”
Contact Information ASSOCIAZIONE “ALDO ARIENTI AMICI C.O.O – ONLUS”c/o U.O. COO – Chirurgia Oncologica OrtopedicaP.za Cardinal Ferrari 120122 MilanoItaly Tel. +39 (0)258296667Email: arienti-pini@gpini.itWeb: http://www.gpini.it/servizi/associazioni/ARIENTI/index.html Organisation Profile The Association supports adult and paediatric sarcoma patients in cooperation with the orthopedic institute Gaetano Pini in Milan.
Read MoreUSA: GSI – GIST Support International
Contact Information GIST Support International (GSI)12 Bomaca DriveDoylestown, PA 18901 Tel.: +1 215- 340-9374Email: gsi@gistsupport.orgWeb: http://www.gistsupport.org/ Contact Person Barbara Doré (Board Member)Email: barbara@gistsupport.org Julie Royster (Science Co-ordinator)Email: julie@gistsupport.org Organisation Profile GIST Support International (GSI) is an all-volunteer group of patients with gastrointestinal stromal tumor (GIST), family members, and interested professionals. Our e-mail listserv includes over 1400…
Read MoreUK: Desmoid Fibromatosis UK Patients & Caregivers
Contact Information https://www.facebook.com/groups/716472531722406/ [Closed group]Facebook: https://www.facebook.com/groups/142693282944740/ Contact Person Lisa PascoeEmail: lisa.desmoiduniteduk@gmail.com Organisation Profile Desmoid Fibromatosis Patients & Carers U.K ( DFPCUK ) is here to empower, support and educate patients through and beyond their diagnosis of a desmoid tumour. We currently have our facebook page to share information and up to date news on what’s…
Read MoreBulgaria: GIST Alliance for Patients Bulgaria
Bulgaria: GIST Alliance for Patients Bulgaria Back to members Organisation Profile GIST and STS Alliance for patients-Bulgaria started its activities in January 2012 as a non-profit organization supporting people, their families and caregivers, affected by these rare cancers in Bulgaria. We provide them with reliable information in native language and advocate for better treatment access.…
Read MorePoland: Stow. Pomocy Chorym Na Miesaki “SARCOMA”
Contact Information Stow. Pomocy Chorym Na Miesaki “SARCOMA” ul. Malborska 14/5 03-286 Warszawa Poland Tel. +48 608 335 326 Email: biuro@sarcoma.pl Web: www.sarcoma.pl Contact Person Kamil Dolecki Email: Kamil.Dolecki@sarcoma.pl Szymon Bubilek Email: Szymon.Bubilek@sarcoma.pl Pola Gmaj Email: Pola.Gmaj@sarcoma.pl Katarzyna Michniewska Email: Katarzyna.Michniewska@sarcoma.pl Aleksandra Tobota Email: Aleksandra.Tobota@sarcoma.pl
Read MoreItaly: A.I.G. Associazione Italiana GIST
Contact Information A.I.G. ASSOCIAZIONE ITALIANA GIST OnlusPostal address: Casella Postale 55 Pavia Centro, 27100 PaviaLegal address: c/o Fondazione IRCCS Istituto Nazionale dei Tumori, Via G. Venezian 1, 20133 MilanoWeb: http://www.gistonline.itEmail: info@gistonline.it Contact Person Barbara Tamagni (Director)Email : barbaratamagni@yahoo.it Organisation Profile A.I.G. Associazione Italiana GIST is a non-profit organization, founded in 2006, providing information, support…
Read MoreUSA: Chordoma Foundation
Contact Information Chordoma Foundation PO Box 2127 Durham, NC 27702-2127USAEmail: info@chordoma.orgWeb: http://www.chordoma.org/ Contact Person Josh Sommer (Excecutive Director)Email: josh@chordoma.org Hans Keulen (European liaison)Email: hans@chordoma.org Organisation Profile About ChordomaChordoma is a relentless and difficult to treat bone cancer that occurs in the head and spine in people of all ages. No drugs are approved to treat…
Read MoreSwitzerland: Swiss GIST Group (2)
Contact Information Das Lebenshaus e.V.Swiss GIST Group/GIST Gruppe Schweiz Sterenweg 7, CH-6300 ZugTel. +41 (0)41 710 80 58Fax +41 (0)41 710 80 78Mail: gist@gist.chWeb: http://www.gist.ch/ Contact Person Martin Wettstein (President)Email: martin.wettstein@gist.ch Helga Meier Schnorf Email: gist@gist.ch Organisation Profile On January 14, 2010 the GIST-Group of Switzerland was founded in accordance with the provisions of…
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