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   Guy Francis Bone Cancer Research Fund Acomb House 23, Front Street Acomb York YO24 3BW Tel. +44 (0)1904 799151Fax +44 (0)1904 783765 Email: info@gfbonecancer.org.ukWeb: www.gfbonecancer.org.uk   Contact Person Mike Francis, ChairmanEmail: mike.francis@gfbonecancer.org.uk   Organisation Profile Founded in 2002 by teenage bone cancer patient Guy Francis shortly before his death, the Guy Francis Bone Cancer…

Email: nederland@chordomafoundation.orgWeb: http://www.chordoma.org  Organisation Profile The Chordoma Foundation is a nonprofit organization dedicated to curing chordoma. Started in the USA in 2007, the Chordoma Foundation is still the only existing organization that unites and represents chordoma patients. Given the rarity of this disease, and the resultant need to leverage all available resources and partners –…

Contact Information SOS Desmoide France 45, rue René La Combe, 49 100 Angers, FranceWeb: www.sos-desmoide.asso.frEmail : association.sos-desmoide@laposte.net   Contact Person Karine le Bobinnec (President)   Organisation Profile  Its aim: like most PAGs, it is to develop the awareness of this disease, stimulate research, inform & support patients. It started in 1998.  The core of our organisation…

Contact Information Friends of MaxSecom Business Centre, A Block Basement,Shiv Sagar Estate, Dr A B Road,Worli, Mumbai 400018, IndiaTel.: +91 22 66603320, +91 22 66603321 Website: www.friendsofmax.infoEmail: friendsofmax@gmail.com SPAEN Contact: Dr Nikhil Guhagarkar (SPAEN Board Member)Email: gdental99@gmail.com Group Profile Friends of Max (www.friendsofmax.info) is the Support Group arm of The Max Foundation in India and…

Contact Information LeiomyoSarcoma Support & Direct Research FoundationPost Office Box 52697Tulsa, Oklahoma 74152Phone: 1-866-912-2730Email: 2lmsdr@gmail.comwww.LMSDR.org Facebook support group: https://www.facebook.com/groups/lmsdr/   Organisation Profile  

         Contact Information Patient Group Name: GIST Cancer UK & PAWS-GISTPennysfield Barn, Dauntsey, Chippenham, Wiltshire, SN15 4HL, UK Patient & Carer Helpline: +44 300 400 0000Website:  www.gistcancer.org.uk & www.pawsgistclinic.org SPAEN Contact: Jayne Bressington – Vice Chair – jayneb@gistcancer.org.uk Organisation Profile GIST Cancer UK are a network of patients and carers affected by GIST, sharing experience and…

Contact Information Soft Tissue Sarcoma People’s OrganizationWeb: http://www.stsp.org/    Organisation Profile Soft Tissue Sarcoma People’s Organization is a web-site with information, resources and personal experiences realting to soft tissue sarcoma and contains two main areas: The first area of this web-site includes information about A.M.M. Eggermont MD’s Cancer Scientific activities. It’s a tribute to his…

Contact Information Association Française des Patients du GIST « Ensemble contre le GIST »Email: info@ensemblecontrelegist.comWeb: http://www.ensemblecontrelegist.com   Contact Person Estelle Lecointe (President)   Organisation Profile A.F.P.G. « Ensemble contre le GIST » was created in October 2005, several months after Estelle’s own GIST diagnosis. The main objectives of this organization consist in providing patients, caregivers…

Contact Information  Sarcoma Cancer Foundation of Canada374 Lippincott StreetToronto, ONM5S 2P7 Email: info@sarcomacancer.caWeb: www.sarcomacancer.ca Organisation Profile  The Sarcoma Cancer Foundation of Canada (SCFC) is Canada’s national organization dedicated to providing patient support and education while working with Canada’s leading research institutions to eradicate the disease.The SCFC was founded in 2010 in memory of Vera Arajs…