Italy: Associazione Aurora Tomaselli

February 25, 2011

Contact Information Associazione Aurora Tomaselli/Association Aurora Tomaselli Research and Prevention Via Valle Borbera 82 00141 Roma Italy Tel. +39 (0)68177637Email: info@auroratomaselli.orgWeb: http://www.auroratomaselli.org    Organisation Profile  The group is focussing on research and prevention of osteosarcomas.

Read More

USA: Life Raft Group

February 25, 2011

Contact Information The Life Raft Group155 Route 46 West, Suite 202 Wayne, NJ 07470 USA Tel.: 973-837-9092Fax: 973-837-9095Email: liferaft@liferaftgroup.orgWeb: www.liferaftgroup.org   Contact Person Norman Scherzer (Executive Director)Email: nscherzer@liferaftgroup.org   Organisation Profile The Life Raft Group (LRG) is a non-profit organization providing support, through information, education, and innovative research to patients with a rare cancer called…

Read More

Finland: Finnish GIST and Sarcoma Patient Network

February 25, 2011

Finland: Finnish GIST and Sarcoma Patient Network Back to members Organisation Profile Sarcoma network The network is a group for adult Sarcoma patients and their family members. The peer-to-peer network operates in a closed Facebook group.  The group provides you a place where you can find peer support, talk about the illness and its treatments,…

Read More

Romania: HomeCare Association

February 25, 2011

Contact Information HomeCare Association covering breast and gynaecologic cancers including sarcomas Email: grupsperantabrasov@yahoo.com     Contact Person Simona Ene (President) Email: si_mi_ene@yahoo.com  

Read More

Italy: ASSOCIAZIONE “ALDO ARIENTI AMICI C.O.O – ONLUS”

February 25, 2011

Contact Information ASSOCIAZIONE “ALDO ARIENTI AMICI C.O.O – ONLUS”c/o U.O. COO – Chirurgia Oncologica OrtopedicaP.za Cardinal Ferrari 120122 MilanoItaly Tel. +39 (0)258296667Email: arienti-pini@gpini.itWeb: http://www.gpini.it/servizi/associazioni/ARIENTI/index.html    Organisation Profile  The Association supports adult and paediatric sarcoma patients in cooperation with the orthopedic institute Gaetano Pini in Milan.

Read More

USA: GSI – GIST Support International

February 25, 2011

Contact Information GIST Support International (GSI)12 Bomaca DriveDoylestown, PA 18901 Tel.: +1 215- 340-9374Email:  gsi@gistsupport.orgWeb: http://www.gistsupport.org/   Contact Person Barbara Doré (Board Member)Email: barbara@gistsupport.org Julie Royster (Science Co-ordinator)Email: julie@gistsupport.org Organisation Profile GIST Support International (GSI) is an all-volunteer group of patients with gastrointestinal stromal tumor (GIST), family members, and interested professionals.  Our e-mail listserv includes over 1400…

Read More

UK: Desmoid Fibromatosis UK Patients & Caregivers

February 25, 2011

Contact Information https://www.facebook.com/groups/716472531722406/ [Closed group]Facebook: https://www.facebook.com/groups/142693282944740/ Contact Person Lisa PascoeEmail: lisa.desmoiduniteduk@gmail.com Organisation Profile Desmoid Fibromatosis Patients & Carers U.K ( DFPCUK ) is here to empower, support and educate patients through and beyond their diagnosis of a desmoid tumour. We currently have our facebook page to share information and up to date news on what’s…

Read More

Bulgaria: GIST Alliance for Patients Bulgaria

February 25, 2011

Bulgaria: GIST Alliance for Patients Bulgaria Back to members Organisation Profile GIST and STS Alliance for patients-Bulgaria started its activities in January 2012 as a non-profit organization supporting people, their families and caregivers, affected by these rare cancers in Bulgaria. We provide them with reliable information in native language and advocate for better treatment access.…

Read More

Poland: Stow. Pomocy Chorym Na Miesaki “SARCOMA”

February 25, 2011

Contact Information Stow. Pomocy Chorym Na Miesaki “SARCOMA” ul. Malborska 14/5  03-286 Warszawa Poland Tel. +48 608 335 326 Email: biuro@sarcoma.pl Web: www.sarcoma.pl   Contact Person Kamil Dolecki Email: Kamil.Dolecki@sarcoma.pl Szymon Bubilek Email: Szymon.Bubilek@sarcoma.pl Pola Gmaj Email: Pola.Gmaj@sarcoma.pl Katarzyna Michniewska Email: Katarzyna.Michniewska@sarcoma.pl Aleksandra Tobota Email: Aleksandra.Tobota@sarcoma.pl  

Read More