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Email: info@patientenplatformsarcomen.nlWeb: http://www.patientenplatformsarcomen.nl Organisation Profile In 2003 a Dutch patient organisation was established for GIST patients. This group flourished and grew steadily, reaching over 450 members in 2016, including Dutch speaking patients in Belgium. In 2012 a patient organisation was created for all other sarcoma patients. This group faced severe challenges because of the diversity…

Contact Information SOS DesmoidMail: info@sos-desmoid.deWeb: www.sos-desmoid.de   Contact Person Christina BaumgartenEmail: cbaumgarten@sos-desmoid.de   Organisation Profile sos-desmoid was founded as a charitable organization on 21st November 2009 in Mannheim, Germany. It was initiated by Prof. Peter Hohenberger (an oncologist and researcher of desmoid tumors) of the university of Mannheim and Miss Anja Herrmann (a psychologist) from…

Contact Information Alianza GIST Web: www.alianzagist.org    Organisation Profile Alianza GIST is a partnership of patient advocates representing the Latin American countries and aims to improve the knowledge of patients and physicians, as well as increase treatment access, support local patient organizations, and encourage collaboration and coordination amongst physicians.

Contact Information Campaigning for CancerWebsite: www.campaign4cancer.co.zaEmail: info@campaign4cancer.co.za Postal Address44 Forbes StreetFellside2192JohannesburgSouth Africa Contact PersonMicaela DanielsEmail: Micaela@campaign4cancer.co.za   Organisation Profile Pioneering cancer advocacy in South Africa, Campaigning for Cancer lobbies for the promotion and protection of the rights of patients and those affected by cancer with regard to policy, healthcare costs and healthcare delivery. Campaigning for…

Contact Information Sarcoma UK49-51 East RoadLondonN1 6AHUnited Kingdom Email:  info@sarcoma.org.ukWeb: https://sarcoma.org.uk/   Contact Person Roger Wilson (Honorary President)Email: spaen@sarcomauk.org Richard Davidson (CEO)Email: info@sarcoma.org.uk   Organisation Profile Sarcoma UK is a national charity that funds vital research, offers support for anyone affected by sarcoma cancer and campaigns for better treatments. It is the only cancer charity…

Contact Information   Contactgroep GIST Nederland – BelgiëPostbus 8152 3503 RD UtrechtTel.: (030) 291 60 90Email: info@contactgroepgist.nlWeb: http://www.contactgroepgist.nl/   Organisation Profile Established in 2003, Contactgroep GIST is the organization for Dutch and Flemish speaking GIST patients (and their families), with members in The Netherlands, Flemish Belgium, and i.e. in Germany, Italy, Norway, Portugal and the…

  Contact Information Deutsche Sarkom-Stiftung/German Sarcoma Foundation Caspar-Bender-Weg 31D-61200 Wölfersheim / GermanyHotline.: ++49 (0)700-4884-0700 (GIST, Sarcomas)Direct phone: +49 6036 9836 142Mail: info@sarkome.deWeb: www.sarkome.deFacebook & Twitter: @Sarkomstiftung SPAEN Contact Person Markus WartenbergEmail: markus.wartenberg@sarkome.de Kai PilgermannEmail: kai.pilgermann@sarkome.de Organisation Profile The Foundation was launched with the aim of advancing our understanding of oncology, specifically relating to sarcomas, gastrointestinal…

Contact Information VCare FoundationA102, Om Residency,J W Rd, Near Tata Memorial HospitalOpp Bhoiwada Court,Parel (East)Mumbai 400012 India   Contact/Helpline numbers: 9821949401, 9821949402, 022-24141856 Email: admin@vcarecancer.org Website: www.vcarecancer.org Facebook: www.facebook.com/vcarefoundationindia   SPAEN Contact Mrs. Vandana GuptaEmail: admin@vcarecancer.org Group Profile V Care Foundation is a voluntary support group dedicated to providing free help, hope, awareness and education…

Contact Information Recovering Together Association/Gyógyulj Velünk Egyesület (RTA/GYVE)Szent Laszlo Korhaz (Hospital), Tuzmadar Haz1097, BudapestHungary+36309227797Email: info@gyve.huWeb: www.gyve.hu Facebook: https://www.facebook.com/egyesulet.gyogyuljvelunk Youtube: https://www.youtube.com/channel/UC-N4WM4D81cn3NwuuCyK0JA   Contact Person Zoltan Kalo (Patient & Board Member/ International relations)E-Mail: zoltankalo@yahoo.com+36706627092   Organisation Profile The Recovering Together Association was created to raise awareness of cancer and to support those affected in all life situations.…