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Bulgaria: GIST Alliance for Patients Bulgaria
Contact Information GIST and STS Alliance for Patients – BulgariaWeb: http://www.gist-bg.com/Email: info@gist-bg.com Contact Person Yuliana Popova (President)Email: youlianapopova@yahoo.com Organisation Profile GIST and STS Alliance for patients-Bulgaria started its activities in January 2012 as a non-profit organization supporting people, their families and caregivers, affected by these rare cancers in Bulgaria. We provide them with reliable information…
Read MoreUSA: Sarcoma Foundation of America
USA: Sarcoma Foundation of America Back to members Organisation Profile Mission The mission of the Sarcoma Foundation of America (SFA) is to advocate for sarcoma patients by funding research and by increasing awareness about the disease. The organization raises money to privately fund grants for sarcoma researchers and conducts education and advocacy efforts on…
Read MoreUSA: The National Leiomyosarcoma Foundation (NLMSF)
USA: The National Leiomyosarcoma Foundation (NLMSF) Back to members Organisation Profile The National Leiomyosarcoma Foundation (NLMSF) was founded in 1999, by a caregiver, in support of his wife’s LMS diagnosis. The focus of the Foundation: A resource for the LMS community of patients, families, and caregivers experiencing leiomyosarcoma (LMS) – a sarcoma subtype, affecting connective and smooth muscle tissue. The Foundation hosts…
Read MoreUK: “PAWS-GIST” (Paediatric Adolescent Wildtype Syndromic-GIST)
Contact Information “PAWS-GIST” (Paediatric Adolescent Wildtype Syndromic-GIST)Pennysfield Barn, Dauntsey, Chippenham, Wiltshire, SN15 4HL, UK Telephone Number incl. country code: Patient & Carer Helpline: +44 300 400 0000Website: www.gistsupportuk.com & www.pawsgistclinic.org SPAEN Contact: Jayne Bressington – Vice Chair – jayneandkim@aol.com Organisation Profile GIST Support UK are a network of patients and carers affected by GIST,…
Read MoreItaly: Le Ali Onlus and COO-BS (Centro di Oncologia Ortopedica – Brescia)
Contact Information Le Ali Onlus Web: http://www.lealionlus.org/Email: info@lealionlus.org COO – Centro di Oncologia Ortopedica – Brescia: Web: www.coobs.itEmail: ippolito@coobs.it Contact Person Le Ali Onlus President: Francesca Piccolo: frapiccol@libero.it COO-BS (Centro di Oncologia Ortopedica – Brescia): Dr. V. Ippolito: ippolito@coobs.itTel.: (+39) 030.3995393 Organisation Profile…
Read MoreUSA: The Karen Wyckoff Rein in Sarcoma Foundation (KWRISF)
Contact Information The Karen Wyckoff Rein in Sarcoma Foundation (KWRISF)3312 Richmond Avenue Shoreview, Minnesota, 55126-3842Email: info@reininsarcoma.orgWeb: http://www.reininsarcoma.org Organisation ProfileThe Karen Wyckoff Rein in Sarcoma Foundation (KWRISF) is a resource for families touched by sarcomas, an uncommon and often lethal group of bone and soft tissue cancers that may strike children and younger adults, leaving an…
Read MoreAustralia: Sarah-Grace Sarcoma Foundation
Contact Information The Sarah Grace Sarcoma Foundation Email: gm@kicksarcoma.org.au Website: www.kicksarcoma.org.au  Contact Person Dr Grace Moshi (Founder and Director)Email: findcureforsarcoma@gmail.com  Organisation Profile The Sarah-Grace Sarcoma Foundation advocates for increased research to find new and better therapies for treating sarcoma patients. The Foundation aims to spread excellence in the field of sarcoma and improve…
Read MoreUSA: Sarcoma Coalition
Contact Information https://sarcomacoalition.us/ Contact Person Annie Achee, Member of the Sarcoma Coalition Steering CommitteeEmail: annieachee@aol.com Organisation Profile The Sarcoma Coalition is comprised of Patient Advocacy organizations and foundations that represent a cross-section of sarcoma subtypes or a pan-sarcoma group. There is no individual membership.The membership of the Coalition has a designated representative to participate…
Read MoreCuracao: Synovial Sarcoma Research Foundation
Curacao: Synovial Sarcoma Research Foundation Back to members Organisation Profile Our mission: to help find a cure for Synovial Sarcoma by making a long term commitment to initiate, increase, stimulate and fund “breakthrough” research worldwide. The Synovial Sarcoma Research Foundation is the primary partner for people and organizations worldwide that want to donate or otherwise…
Read MoreSwitzerland: Swiss GIST Group
Contact Information Swiss GIST Group/GIST Gruppe Schweiz/Groupe GIST Suisse Sterenweg 7, CH-6300 ZugTel. +41 (0)41 710 80 58Mail: gist@gist.chWeb: http://www.gist.ch/ Contact Person Martin Wettstein (President)Email: martin.wettstein@gist.ch Helga Meier Schnorf Email: gist@gist.ch Organisation Profile On January 14, 2010 the GIST-Group of Switzerland was founded in accordance with the provisions of the Swiss Civil Code. The…
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