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Germany: SMARCB1 e.V.
Germany: SMARCB1 e.V. Back to members Contact Information SMARCB1 e.V. Michael.Wortmann@smarcb1.de www.smarcb1.de Key Contacts Michael Wortmann 📧Michael.Wortmann@smarcb1.de General Information Year of establishment: SPAGN member since: No. of members:
Read MorePoland: Stow. Pomocy Chorym Na Miesaki “SARCOMA”
Contact Information Stow. Pomocy Chorym Na Miesaki “SARCOMA” ul. Malborska 14/5 03-286 Warszawa Poland Tel. +48 608 335 326 Email: biuro@sarcoma.pl Web: www.sarcoma.pl Contact Person Kamil Dolecki Email: Kamil.Dolecki@sarcoma.pl Szymon Bubilek Email: Szymon.Bubilek@sarcoma.pl Pola Gmaj Email: Pola.Gmaj@sarcoma.pl Katarzyna Michniewska Email: Katarzyna.Michniewska@sarcoma.pl Aleksandra Tobota Email: Aleksandra.Tobota@sarcoma.pl
Read MoreItaly: A.I.G. Associazione Italiana GIST
Contact Information A.I.G. ASSOCIAZIONE ITALIANA GIST OnlusPostal address: Casella Postale 55 Pavia Centro, 27100 PaviaLegal address: c/o Fondazione IRCCS Istituto Nazionale dei Tumori, Via G. Venezian 1, 20133 MilanoWeb: http://www.gistonline.itEmail: info@gistonline.it Contact Person Barbara Tamagni (Director)Email : barbaratamagni@yahoo.it Organisation Profile A.I.G. Associazione Italiana GIST is a non-profit organization, founded in 2006, providing information, support…
Read MoreUSA: Chordoma Foundation
Contact Information Chordoma Foundation PO Box 2127 Durham, NC 27702-2127USAEmail: info@chordoma.orgWeb: http://www.chordoma.org/ Contact Person Josh Sommer (Excecutive Director)Email: josh@chordoma.org Hans Keulen (European liaison)Email: hans@chordoma.org Organisation Profile About ChordomaChordoma is a relentless and difficult to treat bone cancer that occurs in the head and spine in people of all ages. No drugs are approved to treat…
Read MoreSwitzerland: Swiss GIST Group (2)
Contact Information Das Lebenshaus e.V.Swiss GIST Group/GIST Gruppe Schweiz Sterenweg 7, CH-6300 ZugTel. +41 (0)41 710 80 58Fax +41 (0)41 710 80 78Mail: gist@gist.chWeb: http://www.gist.ch/ Contact Person Martin Wettstein (President)Email: martin.wettstein@gist.ch Helga Meier Schnorf Email: gist@gist.ch Organisation Profile On January 14, 2010 the GIST-Group of Switzerland was founded in accordance with the provisions of…
Read MoreIndia: DigiSwasthya Foundation
India: DigiSwasthya Foundation Back to members Group Profile DigiSwasthya Foundation provides accessible & affordable healthcare services to the remotest parts ofIndia by leveraging technology. This is implemented in three sections – teleconsultations, awarenessprograms, and referral pathways. We have served 6000+ patients from rural India and marginalised groupsfrom urban India through tele-consultations…
Read MorePoland: Stow. Pomocy Chorym Na GIST
Contact Information Stow. Pomocy Chorym Na GIST 01 652 Warszawa, ul. Potocka 14 Tel. (22) 832 21 03 Email: stowarzyszenie@gist.plWeb: www.gist.pl Contact Person Piotr Fonrobert Organisation Profile The Polish GIST Patients Support Association is a non profit, NGO representing GIST patients and their relatives. Our main goal is to promote all necessary knowledge…
Read MoreIsrael: Israeli GIST Patients Organisation
Contact Information Israeli GIST Patients Organisation Web: http://www.gist.org.il/ (Hebrew) Contact Person Avi Zigdon, ChairmanEmail: gist.israel07@gmail.com Organisation Profile The Israeli GIST Patients Organization is operating since Oct. 2007 in order to bring GIST patients the most updated information about new drugs, new research and supporting GIST patients and their families. We are also increasing…
Read MoreUSA: Beat Sarcoma
Contact Information Beat Sarcoma76 Ellsworth Street San Francisco, CA 94110, USATel.: +1 (415) 826 0474Email: info@beatsarcoma.orgWeb: www.beatsarcoma.org Organisation Profile Beat Sarcoma is a volunteer initiative, launched in 2007 by a sarcoma patient, to help increase awareness about sarcomas, raise funds for research and assist with survivorship issues. We raise funds to sponsor specific research projects…
Read MoreItaly: Orchestra per la Vita Onlus
Contact Information Orchestra per la Vita Onlus Email: info@orchestraperlavita.orgWeb: www.orchestraperlavita.org Contact Person Leda Berto (President) Mail: info@orchestraperlavita.org Andrea Bolzicco Mail: andrea.bolzicco@orchestraperlavita.org Organisation Profile Orchestra per la Vita Onlus has supported the Epithelioid Sarcoma research at the National Cancer Research center (IRCCS Istituto Nazionale dei Tumori ) in Milan during the last 5 years with…
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