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SPAEN Advocacy in Action Award for best projects in sarcoma patients advocacy Patient advocacy ensures that people are heard, take action and ultimately improve situations, achieve changes or help to fulfil unmet medical needs. We believe it is time to shout out about how important patient advocacy in sarcomas is – for patients, caregivers, healthcare…

by Roger Wilson, co-founder and honorary president of SPAEN and founder of Sarcoma UKResearch Involvement and Engagement, February 2018   Patient involvement in research is about adding value rather than commenting on technical quality. After 15 yearsas an involved patient in cancer research I started looking around and I found I was asking myself, where…

  Patient advocacy ensures that people are heard, take action and ultimately improve situations, achieve changes or help to fulfil unmet medical needs. The projects that were entered for the “Sarcoma Advocacy in Action Award 2018” once again showed this impressively! All entries were fantastic and the jury had a hard job to decide on…

SPAEN Advocacy in Action Award 2021 announced for best projects in sarcoma patients advocacy Patient advocacy ensures that people are heard, take action and ultimately improve situations, achieve changes or help to fulfil unmet medical needs. We believe it is time to shout out about how important patient advocacy in sarcomas is – for patients,…

Blindtext Ich bin Blindtext. Von Geburt an. Ein trauriges Leben ist das. Ich kenne weder Erzeuger noch Autor. Irgendwann haben sie mich in die Welt gesetzt, und seitdem werde ich herum gereicht. Meine Eltern bekennen sich nicht einmal zu mir. Ich stehe ganz allein da. Meistens zwischen schillernden neuen Layouts, die dann alle bewundern. Oder…

Contact Information FUNDACIÓN MARI PAZ JIMENEZ CASADOPlaza Valparaiso, nº 4 Escalera Derecha – 5º G 28016 Madrid Email: info@fundacionmaripazjimenez.orgWeb: http://www.fundacionmaripazjimenez.org/ Contact Person Alberto Martinez Gutierrez (Patron and Treasurer)Email: almartinez@fundacionmaripazjimenez.org Organisation profile The FUNDACIÓN MARI PAZ JIMÉNEZ CASADO (FMPJC) is an independent, non-profit organization with financial and functional autonomy, and whose scope of action is the…

Contact Information ASARGA – Associacion Sarcomas of Galicia Email: secretaria@asarga.es Web: https://www.asarga.es/ Tel.: +34900801117 Organisation profile A non-profit association that brings together those affected with any type of Sarcoma in Galicia and throughout Spain. We provide support to the people who suffer from it and their families. Asarga has the following general services: Management of…