Blog & News
Italy: Le Ali Onlus and COO-BS (Centro di Oncologia Ortopedica – Brescia)
Contact Information Le Ali Onlus Web: http://www.lealionlus.org/Email: info@lealionlus.org COO – Centro di Oncologia Ortopedica – Brescia: Web: www.coobs.itEmail: ippolito@coobs.it Contact Person Le Ali Onlus President: Francesca Piccolo: frapiccol@libero.it COO-BS (Centro di…
Italy: Luogo di incontro per scambiarsi informazioni sul tumori Desmoide o Fibromatosi agressiva
Contact Information Luogo di incontro per scambiarsi informazioni sul tumori Desmoide o Fibromatosi agressiva Email: elisaruo@yahoo.itWeb: www.desmoide.it Contact Person Elisa Baldoin (Patient)Email: elisaruo@yahoo.it
Italy: Noi per Voi per il Meyer Onlus – Associazione di Genitori, contro le leucemie e i tumori infantili
Contact Information Noi per Voi per il Meyer Onlus – Associazione di Genitori, contro le leucemie e i tumori infantili Tel: +39 (0)55-580030Tel/Fax +39 (0)55-414433Email: info@noipervoi.orgWeb: http://www.noipervoi.org Organisation Profile Noi per Voi is an association of parents against leukemia and childhood cancers,…
Italy: RUKIJE un raggio di sole – Associazione pazienti oncologici dell’aparato muscolo-scheletrico
Contact Information RUKIJE un raggio di sole – Associazione pazienti oncologici dell’aparato muscolo-scheletricoVia Fontanelle di Sant’Apollaria, 16 cap 00039 Zagarolo (Roma)Italy Email: info@rukije.orgWeb: www.rukije.org Contact Person Monica Morelli (President) Email: monicamorelli@rukije.org Organisation Profile The activities of the association are addressed to people…
Italy: Soft Tissue Sarcoma People’s Organization
Contact Information Soft Tissue Sarcoma People’s OrganizationWeb: http://www.stsp.org/ Organisation Profile Soft Tissue Sarcoma People’s Organization is a web-site with information, resources and personal experiences realting to soft tissue sarcoma and contains two main areas: The first area of this web-site includes…
Netherlands: Chordoma Foundation Europe
Email: nederland@chordomafoundation.orgWeb: http://www.chordoma.org Organisation Profile The Chordoma Foundation is a nonprofit organization dedicated to curing chordoma. Started in the USA in 2007, the Chordoma Foundation is still the only existing organization that unites and represents chordoma patients. Given the rarity of this…
Netherlands: Contactgroep GIST Nederland – België
Contact Information Contactgroep GIST Nederland – BelgiëPostbus 8152 3503 RD UtrechtTel.: (030) 291 60 90Email: info@contactgroepgist.nlWeb: http://www.contactgroepgist.nl/ Organisation Profile Established in 2003, Contactgroep GIST is the organization for Dutch and Flemish speaking GIST patients (and their families), with members in…
Netherlands: Patientenplatform Sarcomen
Email: info@patientenplatformsarcomen.nlWeb: http://www.patientenplatformsarcomen.nl Organisation Profile In 2003 a Dutch patient organisation was established for GIST patients. This group flourished and grew steadily, reaching over 450 members in 2016, including Dutch speaking patients in Belgium. In 2012 a patient organisation was created for…
Norway: Sarkomer Norway
Contact Information Sarkomer Norway Mail: info@sarkomer.no Website: http://sarkomer.no/ Contact Person Cathrine Moen-Nilsen Email: cathrine@sarkomer.no Organisation Profile Sarkomer was founded on the 1st of October 2011 and is a nationwide patient organisation and a support group for everyone affected by sarcoma. We offer…
Poland: Stow. Pomocy Chorym Na GIST
Contact Information Stow. Pomocy Chorym Na GIST 01 652 Warszawa, ul. Potocka 14 Tel. (22) 832 21 03 Email: stowarzyszenie@gist.plWeb: www.gist.pl Contact Person Piotr Fonrobert Organisation Profile The Polish GIST Patients Support Association is a non profit, NGO representing GIST…