Blog & News

Knowledge Spot: Gamma Secretase Inhibitors in Desmoid Tumors

Nov 23, 2022 | Comments Off on Knowledge Spot: Gamma Secretase Inhibitors in Desmoid Tumors

Mark you calendars for our next Knowledge Spot: “Gamma Secretase Inhibitors – A new paradigm in Desmoid Tumors?” December 1, 2022, 5pm CET / 11am ET / 9:30pm IST Update on medical therapies in desmoid tumors, by Prof. Bernd Kasper, University Hospital…

SPAGN Annual Conference 2023 – Save-the-Date

Nov 22, 2022 |

Since 2010, SPAEN/SPAGN has organized annual conferences to bring sarcoma, GIST and desmoid patient groups, experts, researchers and industry together. These conferences were held each year as onsite meetings with approx. 80-100 participants from over 25 countries including patient advocates, leading sarcoma…

CTOS & SPAGN: A newly formed, powerful collaboration in sarcomas

Nov 17, 2022 | Comments Off on CTOS & SPAGN: A newly formed, powerful collaboration in sarcomas

  Woelfersheim / Vancouver, November 17, 2022 – Today, the Connective Tissue Oncology Society and the Sarcoma Patient Advocacy Global Network officially announced their collaboration. The two organizations will work together towards achieving the following shared goals: Raise awareness of sarcoma Identify…

Patient Advocacy
@CTOS 2022

Nov 8, 2022 |

The Annual Conference of the Connective Tissue Oncology Society (CTOS) is the main meeting place for sarcoma experts and all interested in sarcomas each year. In 2022, SPAGN will for the first time ever host a “Patient Advcocay Lounge” during the whole congress as well…

Introducing Voices of Sarcoma: Let Your Voice Be Heard

Nov 7, 2022 |

Thirteen years ago, a handful of people touched by sarcoma were united by a common aim: to bring together sarcoma patient groups and enable them to express a collective voice in the healthcare world. Sarcoma Patients Euronet (SPAEN) was born. While we…

Working at SPAGN: We are hiring!

Oct 24, 2022 |

  Communications Specialist (m/f/d) Part-time or freelance, remotely You… …are an experienced multi-channel communications specialist with interest or experience in patient advocacy and/or medicine, oncology, healthcare or pharma? … like to work independently and flexibly in an international virtual team? … are…

What are your priorities in bone sarcoma research?

Oct 19, 2022 |

Research Priorities in Bone Sarcomas Bone sarcomas are a diverse and hard to treat group of rare cancers. People with bone sarcomas (or primary bone cancer) have high unmet medical needs, and face a range of challenges including delays to diagnosis, disparities in…

SPAEN becomes SPAGN

Aug 19, 2022 |

Sarcoma Patients EuroNet renamed: Sarcoma Patients Advocacy Global Network (SPAGN) Mission, Vision and Core Values revised Frankfurt/Wölfersheim/Germany On Friday, June 24, 2022, the member organisations of SPAEN voted to rename the association from Sarcoma Patients EuroNet (SPAEN) to Sarcoma Patients Advocacy Global…

Sarcoma Research Priorities: First results published

Jul 8, 2022 |

In setting the research agenda for cancers it is important to include the unmet needs of patients. As SPAGN, we are listening to sarcoma patients worldwide and bring their input for the agenda to the medical professionals. The results of the first…

UK: The Myrovlytis Trust

Jul 4, 2022 |

  Contact Information The Myrovlytis trust (Osteosarcoma Now) 26 Cadogan Square London, SW1X 0JP Hotline: +44 (0)20 8050 2091 Mail: contact@myrovlytistrust.org Web: https://osteosarcomanow.org/de/ Twitter: @OsteosarcomaNow LinkedIn: The Myrovlytis Trust   SPAEN Contact Person Dr. Jazzmin Huber Email: jazzmin@myrovlytistrust.org    Organization Profile The Myrovlytis Trust is a medical research charity…