Blog & News

Sweden: Sarkomföreningen

Feb 25, 2011 |

Contact Information Sarkomföreningen Box 49106, 100 28 Stockholm Tel: +46(0)70-603 22 02 http://www.sarkom.se/ Email: info@sarkom.se Visit Sarkomföreningen on Facebook Magnus Carlsson (President) Email: magnus.carlsson@sarkom.se Organisation Profile Sarkomföreningen, The Swedish Sarcoma Association, was founded in 2015 and offers support for sarcomapatients, relatives and…

Switzerland: Swiss GIST Group

Feb 25, 2011 |

Contact Information Swiss GIST Group/GIST Gruppe Schweiz/Groupe GIST Suisse Sterenweg 7, CH-6300 ZugTel. +41 (0)41 710 80 58Mail: gist@gist.chWeb: http://www.gist.ch/ Contact Person Martin Wettstein (President)Email: martin.wettstein@gist.ch Helga Meier Schnorf Email: gist@gist.ch    Organisation Profile On January 14, 2010 the GIST-Group of Switzerland…

Turkey: Genç Birikim Derneği & Youth Accumulation Association

Feb 25, 2011 |

Contact Information Genç Birikim Derneği & Youth Accumulation Associationİstasyon Caddesi Mavi İş Merkezi Kat : 6 No: 6 49100 MUSTurkey Contact Person Salih YüceEmail: salih_yuce@yahoo.comWeb: http://www.gencbirikim.org/   Organisation Profile Youth Accumulation Association was established in 2006 in Muş (Turkey) by a group…

UK: “PAWS-GIST” (Paediatric Adolescent Wildtype Syndromic-GIST)

Feb 25, 2011 |

Contact Information “PAWS-GIST” (Paediatric Adolescent Wildtype Syndromic-GIST)Pennysfield Barn, Dauntsey, Chippenham, Wiltshire, SN15 4HL, UK Telephone Number incl. country code: Patient & Carer Helpline: +44 300 400 0000Website: www.gistsupportuk.com & www.pawsgistclinic.org SPAEN Contact: Jayne Bressington – Vice Chair – jayneandkim@aol.com   Organisation Profile…

UK: Aggressive Fibromatosis Desmoid Tumour Information Page UK

Feb 25, 2011 |

Contact Information Aggressive Fibromatosis Desmoid Tumour Information Page (AF Information) Web: http://af-information.weebly.com   Contact Person India Minton-Barker Email: afibromatosis@hotmail.co.uk      

UK: Bone Cancer Research Trust

Feb 25, 2011 |

Contact Information Bone Cancer Research Trust 10 Feast Field Horsforth Leeds LS18 4TJ UK Tel. +44 (0) 113 258 5934 Email:  info@bcrt.org.uk Web: https://www.bcrt.org.uk/ Facebook: BoneCancerResearchTrust Twitter: @BCRT Instagram: @bonecancerresearch   Organisation Profile Our Vision: A world where primary bone cancer is…

UK: Chordoma UK

Feb 25, 2011 |

Contact Information Web: http://www.chordoma-uk.org c/o UCL Cancer Institute Research Trust72 Huntley Street, London, WC1E 6BT Tel ++44 (0)20 7679 6325 Chordoma UK is administered as part of the UCL Cancer Institute Research Trust, a registered charity (RCN 1135220)   Contact Person Gerald…

UK: GIST Cancer UK and PAWS GIST

Feb 25, 2011 |

         Contact Information Patient Group Name: GIST Cancer UK & PAWS-GISTPennysfield Barn, Dauntsey, Chippenham, Wiltshire, SN15 4HL, UK Patient & Carer Helpline: +44 300 400 0000Website:  www.gistcancer.org.uk & www.pawsgistclinic.org SPAEN Contact: Jayne Bressington – Vice Chair – jayneb@gistcancer.org.uk Organisation Profile GIST Cancer UK…

UK: Guy Francis Bone Cancer Research Fund

Feb 25, 2011 |

   Guy Francis Bone Cancer Research Fund Acomb House 23, Front Street Acomb York YO24 3BW Tel. +44 (0)1904 799151Fax +44 (0)1904 783765 Email: info@gfbonecancer.org.ukWeb: www.gfbonecancer.org.uk   Contact Person Mike Francis, ChairmanEmail: mike.francis@gfbonecancer.org.uk   Organisation Profile Founded in 2002 by teenage bone…

UK: Sarcoma UK

Feb 25, 2011 |

Contact Information Sarcoma UK49-51 East RoadLondonN1 6AHUnited Kingdom Email:  info@sarcoma.org.ukWeb: https://sarcoma.org.uk/   Contact Person Roger Wilson (Honorary President)Email: spaen@sarcomauk.org Richard Davidson (CEO)Email: info@sarcoma.org.uk   Organisation Profile Sarcoma UK is a national charity that funds vital research, offers support for anyone affected by…