7th SPAEN Conference 2016 in Warsaw/Poland

January 15, 2017

Learning, teaching, sharing and a great sense of community Once again, the community of patient advocates for sarcomas, GIST and desmoids have come together for another successful SPAEN Annual Conference from September 8-10, 2016. This year, Poland was the host country, welcoming all participants with great hospitality and warmth to its capital Warsaw. The three…

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Early Involvement: Clinical Studies From A Patient Perspective

January 15, 2017

Clinical studies are an essential step in the development of novel treatment methods for cancer and other diseases. They show researchers what works for the welfare of patients and what does not. In addition to safety and effectiveness they also determine whether the side effects of a new treatment are acceptable and, increasingly, what quality…

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ASCO 2017: GIST and Sarcoma Reports available

January 15, 2017

  The Annual Meeting of the American Society of Clinical Oncology is one of the most important meetings of healthcare professionals in the world. We are therefore delighted to provide you with a comprehensive report about the ASCO 2017 medical highlights in GIST and Sarcomas from Dr Axel Le Cesne, Gustave Roussy Institute, Villejuif, France,…

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International Top 10 Recommendations For Newly Diagnosed GIST Patients

January 15, 2017

For national GIST Patient Support and Advocacy groups: Please translate this list into your national language and provide the document for GIST-Patients on your website. Thank you very much! International “Top-10-Recommendations” for newly diagnosed GIST-Patients. 1. Gastrointestinal stromal tumours (GISTs) belong to the group of sarcomas; they are uncommon tumours of the digestive (gastrointestinal; GI)…

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