iEuroEwing

iEuroEwing is a Phase III international clinical trial to optimize treatment for Ewing sarcoma patients. Agents: Systemic and local therapies Phase III Status Recruiting Sponsor Co-funding of national funding bodies   Further information can be found here.   WHO is the trial for? The trial is open for patients diagnosed with Ewing sarcoma or Ewing-like…

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Board Elections 2025

SPAGN Board Elections: With gratitude and excitement for what’s ahead We are delighted to announce the re-election of Vandana Gupta and Sorrel Bickley to the SPAGN Board for another four-year term. Their continued commitment, expertise, and leadership are invaluable to our work in strengthening the global sarcoma patient advocacy community. We also warmly congratulate Denise…

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USA: Sarcoma Alliance

USA: Sarcoma Alliance  Back to members Organisation Profile The Sarcoma Alliance strives to improve the lives of people affected by sarcoma through accurate diagnosis, improved access to care, guidance, education and support. Suzanne Leider founded the Sarcoma Alliance in 1999 in the living room of her home with the mantra “guidance, education, and support” in…

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USA: Sarcoma Coalition

  USA: Sarcoma Coalition  Back to members Organisation Profile The Sarcoma Coalition is comprised of Patient Advocacy organizations and foundations that represent a cross-section of sarcoma subtypes or a pan-sarcoma group. There is no individual membership. The membership of the Coalition has a designated representative to participate in the Roundtable meetings of the Sarcoma Coalition…

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2025 Lifetime Achievement Awards – Honoring Outstanding Contributions

🏅 2025 Lifetime Achievement Awards – Honoring Outstanding Contributions SPAGN is proud to announce the recipients of the 2025 Lifetime Achievement Awards given during the SPAGN Annual Conference 2025, recognizing their exceptional dedication and lasting impact on the sarcoma community through advocacy, research, and support. This year’s honorees have each played a key role in…

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Uganda: UAPO

Uganda: Uganda Alliance of Patients’ Organizations (UAPO) Back to members Organisation’s profile  UAPO is a patient-driven not-for-profit civil society organization founded in 2011. UAPO leads the patients voice through membership,collaboration and partnerships with other patient and advocacy organizations; healthcare professionals, private sector entities,pharmaceutical industry; regulatory authorities, policy makers, NGOs, academics,researchers, consumer organizations; patient advocacy groups;…

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Advocacy in Action Award & The “Paola Gonzato Memory Award” 2025

🏆 2025 Advocacy in Action Awards – Recognizing Excellence in Sarcoma Advocacy Projects SPAGN is proud to announce the recipients of the 2025 Advocacy in Action Awards, presented during the SPAGN Annual Conference 2025. These awards celebrate innovative and impactful advocacy projects that have made a significant difference in the sarcoma community. This year’s winning…

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Osteomyc

A Phase 2 Pilot Study to Evaluate the Safety and the Anti-Tumour Activity of the Myc Inhibitor OMO-103 Administered Intravenously in Patients With Advanced High-Grade Osteosarcoma (Osteomyc) Agents: OMO-103 Phase II Status Open, recruiting Sponsor Vall d’Hebron Institute of Oncology This is an open-label, unicentric, single-arm Phase 2 pilot study to serve as a proof-of-concept…

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METÁFORAS QUE IMPORTAN ¿Somos raros? ¿Somos guerreros?

El uso de metáforas está estrechamente relacionado con el cáncer: recurrimos a ellas porque la literalidad a veces es aterradora. Y porque, dentro de la zona de confort del lenguaje, podemos salvarnos (o condenarnos). Natalia Fernández, investigadora del lenguaje de los pacientes con sarcoma, analiza por qué recurrimos a las metáforas y aboga por humanizar nuestro lenguaje.

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EURACAN Launches New Website – Share Your Feedback!

🆕 EURACAN has recently launched its new website, designed to enhance accessibility and provide valuable resources for the sarcoma community. We invite you to explore the site and let us know your thoughts! 🌐 Visit the new EURACAN website HERE.  To ensure the website meets the needs of its users, EURACAN is conducting a short…

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