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A view from Brazil: Being part of international networks helps improve sarcoma care
Global cooperation is not an abstract ideal, says Dr. Fernando Campos, medical oncologist from Brazil. He describes the positive impact of international exchange projects on the daily practice of sarcoma care in his country. This is why he hopes that the Sarcoma Awareness Month serve not only to raise awareness, but also to bring us closer together. A reminder of our collective commitment.
Read MoreSwitzerland: Shane Osteosarcoma Association
Switzerland: Shane Osteosarcoma Association Back to members Shane Osteosarcoma Association The Shane Osteosarcoma Association is a Swiss-based nonprofit organization established in honor of Shane, a brave young boy diagnosed with osteosarcoma. Our mission is to raise awareness, support affected families and advance research into osteosarcoma. The association is committed to: Funding innovative research projects that…
Read MoreBreaking Barriers: A rural sarcoma survivor’s mission to overcome disparities in India
July is Sarcoma Awareness Month – a time to not only spotlight a rare and often misunderstood form of cancer but also to amplify stories of resilience, hope and innovation. San¬¬deep Kumar tells his personal story as a bone sarcoma survivor from rural India that has turned into a story of breaking barriers for others. Knowing firsthand what it means to battle cancer in a small town, he endeavored to mobilize technology and experts to bridge the gap between rural patients and quality healthcare.
Read MoreHow to improve quality of life during and after radiotherapy? Sarcoma practice and research in large university clinics in Toronto and Berlin
The winner of this year’s research grant of the German Sarcoma Foundation, Dr. Siyer Roohani, decided to go to Canada to deepen his sarcoma expertise. A soon-to-be radiation oncology specialist for sarcoma in Germany, he currently works and researches as a clinical scholar at one of the largest sarcoma centres in the world, the Princess Margaret Cancer Centre in Toronto, Canada. In a chat with Voices of Sarcoma, he explains why he totally encourages any young scientist to do a work stay abroad, especially those wanting to specialize in sarcoma.
Read MoreFaR-RMS
FaR-RMS: An Overarching Study for Children and Adults with Frontline and Relapsed RhabdoMyoSarcoma Agents: Several drug regimes, including Irinotecan, Actinomycin D, Doxorubicin, Ifosfamide, Vincristine, Vinorelbine, Cyclophosphamide, Temozolomide, radiotherapy, Regorafenib Phase III Status Recruiting Sponsor University of Birmingham For further information please also consult https://www.clinicaltrials.gov/study/NCT06797999 FaR-RMS is an over-arching study for children and adults with newly…
Read MoreUSA: TGCT Support
USA: TGCT Support Back to members Organisation Profile TGCT Support is committed to enhancing treatment options and quality of life for people living with Tenosynovial Giant Cell Tumor (TGCT) through patient-powered research, education and empowerment, and global advocacy efforts. Our vision is to empower a future fueled by data, guiding our journey toward advancement…
Read MoreUSA: GCT Support
USA: GCT Support Back to members Organisation Profile GCT Support is committed to enhancing treatment options and quality of life for people living with Giant Cell Tumor of the Bone (GCT) through patient-powered research, education and empowerment, and global advocacy efforts. Our vision is to empower a future fueled by data, guiding our…
Read MoreROGER EXPLORES… Whole Genome Sequencing: Hopes are high, but limitations (still) a reality
Roger Wilson is an eminent figure in the national and international sarcoma patient advocacy world. Diagnosed in 1999 with a soft tissue sarcoma followed by multiple relapses and operations, Roger is recognized for his knowledge in sarcoma matters. He founded Sarcoma UK, has published many articles, shaped patient-led research and advocacy work, and he is the mastermind behind the concept of Sarcoma Intelligent Specialist Networks (SISN). Roger will share with us from time to time his insights and opinions on sarcoma matters in ROGER EXPLORES… He starts off by examining what’s happening with whole genome sequencing and why it is not the answer to everything, yet! A must read!
Read MoreAn award-winning ‘Manifesto against Sarcomas’: ASARGA campaigns against inequality in sarcoma care in Spain
The winner of this year’s Advocacy in Action Award, ASARGA, is fighting for more equitable access to early diagnosis and better care throughout the country in Spain. The Sarcoma Patient Advocacy Care Group mobilized 3000 supporters for their advocacy initiative to lobby policy makers. Natalia Fernández tells us the story of ASARGA and their efforts to include sarcoma care in Spain’s National Health System Cancer strategy.
Read MoreUSA: Pittsburgh Cure Sarcoma
USA: Pittsburgh Cure Sarcoma Back to members Organisation Profile Our Mission: Raise awareness of childhood and adult sarcoma and fund research in the Pittsburgh region and beyond. In January 2011, Drs. Hussein Tawbi and Kurt Weiss, with the UPMC Hillman Cancer Center, along with a start-up committee of 12 members, joined with the Sarcoma…
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