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  USA: The EHE Foundation Back to members     Organisation Profile   The EHE Foundation is the leading global nonprofit advocacy and research organization dedicated to finding treatments and a cure for epithelioid hemangioendothelioma (EHE), an ultra-rare vascular cancer. We unite patients, researchers, clinicians, and industry to drive scientific progress, advance research, and improve…

USA: Clear Cell Sarcoma Foundation Back to members   Organisation Profile Mission statement: The Clear Cell Sarcoma Foundation (formerly Sara’s Cure) is a Charleston, SC based 501(c)(3) with one mission – to make Clear Cell Sarcoma survivable through education and scientific research while ensuring all patients and caregivers impacted have a voice and platform to enact…

  USA: Make IT Better Agents – pediatric osteosarcoma nonprofit Back to members Organisation Profile MISSION: MIB Agents is a leading pediatric osteosarcoma nonprofit dedicated to Making It Better for our community of patients, caregivers, doctors, and researchers with the goal of less toxic, more effective treatments and a cure for this aggressive bone cancer.…

  USA: GSI – GIST Support International Back to members Organisation Profile GIST Support International (GSI) is an all-volunteer group of patients with gastrointestinal stromal tumor (GIST), family members, and interested professionals.  Our e-mail listserv includes over 1400 subscribers who form an online community to share information about GIST treatment and to support each other in living with…

USA: Chordoma Foundation Back to members Organisation Profile Chordoma is a rare cancer that grows in the bones of the skull and spine. It can affect people of all ages and is diagnosed in just one in one million people per year. Chordomas are complicated tumors to treat properly and often regrow after treatment. Currently,…

  USA: Chondrosarcoma Foundation Back to members Organisation Profile The purpose of CS Foundation is to educate the public about Chondrosarcoma; support and advocate for patients and families that are suffering from this disease, and advocate to improve the treatment and care for these patients. CS Foundation also strives to advocate and promote positive changes…

UK: The Boom Foundation   Back to members Organisation Profile ​ The Boom Foundation is the only charity in Northern Ireland dedicated to supporting patients suffering from sarcoma cancer.  There are over 100 new patients diagnosed with sarcoma each year in NI, many of whom are children. In its first year (April 2013 – April…

A multicenter, randomized, phase III study to assess the efficacy and safety of intratumorally administered INT230-6 in locally recurrent, inoperable or metastatic soft tissue sarcomas. Agents: INT230-6 Phase III Status Open, recruiting Sponsor Intensity Therapeutics, Inc.   Further information: https://www.clinicaltrials.gov/study/NCT06263231   WHO is the trial for? Adult patients with the following subtypes of soft tissue…