What is a sarcoma specialist center?

On May 13, 2024, SPAGN published a paper in “Cancers” on the definition, core principles and features of a sarcoma specialist center, developed by patient advocates and healthcare professionals together. The management of sarcomas in specialist centers delivers significant benefits. In much of the world, specialists are not available, and the development of expertise is…

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USA: The Life Raft Group

USA: The Life Raft Group Back to members   Organisation Profile   The Life Raft Group (LRG) is a non-profit organization providing support, through information, education, and innovative research to patients with a rare cancer called GIST (Gastrointestinal Stromal Tumor). Since we received our non-profit status in June 2002, we have expanded our outreach efforts…

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Join the SPAGN Editorial Blog Team: Volunteer Job Opportunity

VOLUNTEER JOB POSTING: Editors for the SPAGN Blog” Voices of Sarcoma” We are looking for volunteers to serve on the Editorial team of SPAGN’s blog “Voices of Sarcoma”.   Sarcoma Patient Advocacy Global Network (SPAGN) is the global network of national sarcoma patient advocacy organizations. Uniting more than 65 member groups from five continents, SPAGN…

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Bulgaria: Sarcomafree Foundation

Bulgaria: Sarcomafree Foundation Back to members Organisation Profile The Sarcomafree Foundation is dedicated to raising worldwide awareness about sarcoma and providing essential funding for research and treatment on a global scale. Their primary aim is to support clinical research projects specifically tailored to address the unique needs of young adults and children battling this disease.…

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My lumpy life as a young adult

“After a shower, I noticed an odd lump on my left hip. Two weeks passed, but Lumpy—the name I declared this mysterious lump—remained. Luckily, I had a when in doubt, check it out mentality…” Read about Matt’s sarcoma journey and find out why sarcoma is like skydiving.

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Spain: FUNDACIÓN MARI PAZ JIMENEZ CASADO

Spain: FUNDACIÓN MARI PAZ JIMENEZ CASADO   Back to members Organisation profile The FUNDACIÓN MARI PAZ JIMÉNEZ CASADO (FMPJC) is an independent, non-profit organization with financial and functional autonomy, and whose scope of action is the Spanish territory. OUR MISSION To help people and groups in a situation of need, mainly those affected by a…

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South Africa: Campaigning for Cancer

South Africa: Campaigning for Cancer Back to members  Organisation Profile Pioneering cancer advocacy in South Africa, Campaigning for Cancer lobbies for the promotion and protection of the rights of patients and those affected by cancer with regard to policy, healthcare costs and healthcare delivery. Campaigning for Cancer does this on an individual patient level -…

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Romania: HomeCare Association

HomeCare Association Back to members Contact Information HomeCare Association Covering breast and gynaecologic cancers including sarcomas 📧 grupsperantabrasov@yahoo.com Key Contacts Simona Ene (President) si_mi_ene@yahoo.com   General Information Year of establishment:  SPAGN member since:  No. of members:   

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