News
Vacancy Announcement: Communications & Content Manager
We are hiring! Communications & Content Manager (m/f/d) Part-time, freelance, remote Approx. 40-60 hours per month, with flexibility depending on project needs and campaign activities You... An experienced communications professional with an interest in patient advocacy, healthcare, oncology,...
ASCO 2026: Strong Momentum for Sarcoma Research
By Kathrin Schuster & Bernd Kasper, June 2026 ASCO 2026 was a remarkable year for sarcoma research: The program included several phase III trials, new targeted therapies, cell therapy approaches, translational research, and biomarker-driven strategies, reflecting the continued evolution of...
SPAGN Annual Conference 2026 Highlights ✨
Photos: Uli Deck A Global Community United by Hope and Collaboration The SPAGN Annual Conference 2026, held in Stockholm, Sweden at Karolinska University Hospital and Elite Hotel Carolina Tower, once again demonstrated the strength, warmth, and determination of the global...
Key Take-Aways for Patients from EMSOS 2026
EMSOS is a leading European society focused on musculoskeletal oncology. Each year, the congress brings specialists together to share the latest insights, treatments, and research results. The 2026 edition took place in Portugal. What also stood out was that the...
Making Expert Knowledge Accessible: New Lay Summary of Desmoid Tumor Consensus
SPAGN has released a new lay summary of the international expert consensus on the management of desmoid tumors, originally published in JAMA Oncology in 2024. While the scientific article was written for clinicians and researchers, the new summary translates its...
Share Your Experience: Contribute to the CURE ID Sarcoma
Patients, care partners, and healthcare providers are invited to share their experiences through the Sarcoma Treatment Survey on CURE ID. CURE ID is a free website and mobile app developed by the U.S. Food and Drug Administration (FDA) and the...
WECAN Patient Experience Data (PED) online course launching on World Cancer Day
Are you part of a patient organisation that wants to shape healthcare decisions, but doesn't always know where to start? On 4 February, WECAN Foundation will launch a free online course on Patient Experience Data (PED) for patients, advocates, patient leaders but also people interested in generating PED within the cancer advocacy...
🧪 New study arm in rEECur trial with Trabectedin for relapsed Ewing sarcoma
Birmingham/Manchester, UK, January 21, 2026 Ewing sarcoma, a rare bone and soft tissue cancer in children and young adults has poor outcomes at relapse. The drug trabectedin offers a hopeful new option for treatment. Patient advocates have collaborated with investigators...
CTOS 2025 Highlights✨
Connective Tissue Oncology Society (CTOS) 2025 Annual Meeting November 12-15, 2025 - Boca Raton, Florida After four intensive days, this year's CTOS Annual Meeting has ended. Once again, it proved to be the central gathering place for the international sarcoma...
Statement on Discontinued Development of Brigimadlin
In light of the recent online discussions about brigimadlin, we would like to briefly recap the key information we shared a few weeks ago regarding SPAGN's engagement in exploring the potential continuation of the drug's development. We hope this summary...