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Welcome to Sarcoma Patient Global Advocacy Network!
Sarcoma Patient Global Advocacy Network (SPAGN), the international Network of Sarcoma, GIST and Desmoid Patient Advocacy Groups, was founded in April 2009 with the aim of extending information services, patient support and advocacy to patient organisations for the benefit of sarcoma patients across the whole of Europe and internationally. Acting in partnership with clinical experts, scientific researchers, industry and other stakeholders SPAGN is working to improve the treatment and care of sarcoma patients through improving information and support, and by increasing the visibility of sarcoma with policymakers and the public. |
European Commission approves vimseltinib for treatment of TGCT
First Approved Treatment for Desmoid Tumors in Europe
Board Elections 2025
2025 Lifetime Achievement Awards – Honoring Outstanding Contributions
Advocacy in Action Award & The “Paola Gonzato Memory Award” 2025
EURACAN Launches New Website – Share Your Feedback!
From grief to action: Founding the Shane Osteosarcoma Association
A research agenda driven by patients – Sarcoma UK to fund £2 million this year
ROGER EXPLORES… Natural therapies: Avoid anything promoted as alternative, rely on science instead
A view from Brazil: Being part of international networks helps improve sarcoma care
Breaking Barriers: A rural sarcoma survivor’s mission to overcome disparities in India
How to improve quality of life during and after radiotherapy? Sarcoma practice and research in large university clinics in Toronto and Berlin
Working together, making a difference.
SPAGN and Members
The network only is as strong as its members. SPAGN welcomes every sarcoma, GIST or desmoid patient group and individuals interested in sarcomas worldwide to become part of our network and thus strengthen it.
Events and Projects
SPAGN not only hosts a variety of events, but also participates in congresses and external events. It is our aim to represent the patients' voice wherever suitable, necessary and potentially helpful to achieve our goals, foremost to improve the situation of sarcoma patients around the globe. Find out more in our section "Events & Projects"
Advocacy & Tools
Our member organizations are very active in their countries and we try to support them wherever possible, and even more so in the future. Please stay tuned, there's more to come!
Experts & Research
Sarcomas are rare. It is therefore very important to find physicians or even better multidisciplinary teams who have experience with this disease. SPAGN is setting up alist of sarcoma centers or centers with sarcoma expertise per country. Find out more here.
Sarcoma Facts & Figures
Sarcomas are a diverse and relatively rare group of malignant tumors. The vast majority of diagnosed sarcomas are soft tissue sarcomas, while malignant bone tumors make up just over 10%.
Find out more about Soft Tissue Sarcomas, Bone Sarcomas, GIST and Desmoid Tumors in our section "Sarcoma Facts & Figures"
Blog, News and Newsletter
Please visit our News section or our SPAGN Blog "Voices of Sarcoma". To get regular information, please sign up for our Newsletter today!