Patient Advocacy @CTOS 2024

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It was a great pleasure to once again host the Patient Advocacy Lounge at CTOS 2024 in San Diego, CA. The lounge served as a vibrant hub where patient representatives connected with researchers, clinicians, and other conference participants — fostering dialogue, collaboration, and visibility for the patient voice in sarcoma care.

One of the highlights from our presence at CTOS 2024 was the Virtual Patient Advocacy Poster Wall, which you can explore below:

📊 Insights from CTOS 2024: Global Sarcoma Diagnosis Survey

At the 2024 CTOS conference, SPAGN presented preliminary findings from our Global Survey on Sarcoma Diagnosis Pathways. This survey explores the challenges faced by sarcoma patients, such as delays in diagnosis and misdiagnoses, and highlights opportunities for systemic improvements.

Take a closer look at the data below to understand the key trends and findings from the survey.

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🔍 Why This Survey Matters

Understanding the real-world experience of sarcoma patients is crucial in advocating for improved diagnosis and care. The survey reveals critical gaps in the current diagnostic process and highlights the importance of timely intervention. By addressing these gaps, we can work towards better outcomes for sarcoma patients globally.

Any questions?

Please get in touch via info@sarcoma-patients.org.

Let's show what the sarcoma patient community can do and how powerful it is -
Working together, making a difference!

 

 

Photos: Uli Deck/Artis, Kelsey Chance/Unsplash