UK: The Myrovlytis Trust

 

Contact Information

The Myrovlytis trust (Osteosarcoma Now)

26 Cadogan Square
London, SW1X 0JP

Hotline: +44 (0)20 8050 2091
Mail: contact@myrovlytistrust.org
Web: https://osteosarcomanow.org/de/
Twitter: @OsteosarcomaNow
LinkedIn: The Myrovlytis Trust

 

SPAEN Contact Person

Dr. Jazzmin Huber
Email: jazzmin@myrovlytistrust.org 
 

Organization Profile

The Myrovlytis Trust is a medical research charity dedicated to rare conditions including osteosarcoma. We fund research and create patient-centred resources for people affected by osteosarcoma.

We have over 10 years of experience working with the rare disease community including:

• Bridging the gap between patients and researchers
• Creating accessible patient-centered resources
• Funding research with a focus on translational research

 

Our Vision 

In 2022 the Myrovlytis Trust launched Osteosarcoma Now. Osteosarcoma Now was developed with the sole purpose of supporting osteosarcoma patients and their families throughout their cancer journey, wherever they live in the world. Through providing clear signposting, user-friendly interfaces and sharing the science in an accessible way we hope we can make a challenging time a little bit easier. Our curated clinical trial database was designed so that patients have the tools and information to explore new treatment options and make decisions that are right for them.