SPAGN Annual Conference 2023


The SPAGN Annual Conference will take place again: After 2 years of living through the pandemic we start again into meeting face to face. During this year’s conference, many exciting topics are waiting for you, from medical and research updates to innovations in the medical world, new approaches in the management of sarcomas, but also active exchange in our market place sessions and discussion panels. You can be involved, too: In a newly established session "Sharing Best Practice" you can submit your projects 5 of which will be presented and discussed during the conference. Submit your projects here.
For the first time ever, the SPAGN Annual Conference will be linked to the New Horizons GIST conference, a global GIST patient advocate conference. Find more information here.
Above all, we look forward to seeing you all again and bringing the sarcoma community back together.
The location: Crowne Plaza Dublin - Blanchardstown, Blanchardstown Town Centre, Dublin 15, Ireland
Please register here.
Please find below the preliminary program or as download here.
DAY 1 – THURSDAY May 11, 2023 | |
12:30 OFFICIAL START OF THE CONFERENCE | |
12:30 (15)
|
Welcome to Dublin/Ireland on behalf of the SPAGN Board of Directors Sorrel Bickley, UK |
12:45 (45) | Patient Host/Chair: Gerard van Oortmerssen, Netherlands
What are the main tasks of pathologists in sarcoma today? Speaker: Bernadette Liegl Atzwanger, Austria |
13:30 (60) | Patient Host/Chair: Markus Wartenberg, Germany
We need more and better research in sarcomas. Get to know two examples of systematic programs: For basic research Speaker: Stefan Fröhling, Germany |
14:30 – 15:00 C O F F E E B R E A K | |
15:00 (75)
|
Patient Host/Chair: Estelle Lecointe-Artzner, France
HTA Health Technology Assessment: The systematic, evidence-based Understanding the rationale and underlying factors behind HTA Short “snapshots” from different countries: UK, France, Germany, Canada, Poland |
16:15 (75)
Call for |
Session Chairs: Vandana Gupta, India
Sharing Best Practice in Patient Support or Patient Advocacy. Call for Abstracts: Completed, ongoing or planned projects |
17:30 – 17:45 S H O R T B R E A K | |
17:45 (60) |
SPAGN AGM (ANNUAL GENERAL MEETING) 2023
All conference participants are welcome! (Voting rights for SPAGN members only) This session has an official invitation / agenda – important topics are: SPAGN Board of Directors, Kathrin Schuster (Executive Director) |
19:30 | Networking Opportunity: Informal “Get Together” Including Award ceremony "Advocacy in Action Award 2022/23" |
DAY 2 – FRIDAY May 12, 2023 | |
07:30 (45) | Early Breakfast Session: Patient Involvement in Cancer Research
Example from Germany: “NCT National Center of Tumour Speaker: Markus Wartenberg, Germany |
08:30 | Welcome to Day 2 |
08:30 (60) |
Patient-Host-/Chair – Moderator: Roger Wilson, UK
Keynote: The value of patient’s input in sarcoma research The patient / patient advocate perspective Discussion |
09:30 – 10:00 C O F F E E B R E A K | |
S08
10:00 (90)
|
Patient-Host-/Chair: TBD
Bone Sarcomas: Focus on developments and special topics
|
11:30 – 13:00 L U N C H and NETWORKING | |
13:00 (60) | Patient Host/Chair: Markus Wartenberg, Germany
Adherence (Compliance) with oral therapies is a complex behaviour. Understanding the challenges and causes of non-adherence Rob Horne, Professor of Behavioral Medicine, UK |
14:00 (60) | Patient Host/Chair: TBD
Diagnosis and therapy of cancer diseases by nuclear medicine and the role of nuclear medicine in sarcomas Wolfgang Fendler, Clinic for Nuclear Medicine, Germany |
15:00 – 15:30 C O F F E E B R E A K | |
15:30
(90) |
The SPAGN “Market Place Sessions” Choose your 3 favourite sessions from 5 market booths Booth 1: Making materials for patients more patient-friendly and clear Booth 2: The 101 of political lobbying: The UK-experience Booth 3: Basics of data protection and data security in patient organizations Booth 4: How is a scientific publication (abstract) structured and how is it created Booth 5: What to consider when working with pharmaceutical companies |
17:00 B R E A K B E F O R E D I N N E R | |
19:30 | External Dinner |
DAY 3 – SATURDAY May 13, 2023 | |
From 07:00 | Breakfast: Meet Your Peers (…on a voluntary basis…)
Breakfast tables according to indication groups: |
08:30 | Welcome to Day 3 |
8:30 (120)
|
Patient Host/Chair: Denise Reinke, USA & Sorrel Bickley, UK
The research forum for soft tissue sarcoma subtypes: Speakers: Jon Trent, Peter Reichardt, Robin Jones, Bernd Kasper
|
10:30 – 11:00 C O F F E E B R E A K | |
11:00 (45)
|
Patient Host/Chair: Kathrin Schuster, SPAGN
Tenosynovial giant cell tumor (TGCT)
|
11:45 (60)
|
Moderator: Roger Wilson, UK & Denise Reinke, USA
Working Session “Global Sarcoma Care Charter 2023”: |
12:45 | Closing Remarks – Farewell – End of Meeting SPAGN Board of Directors |
13:00 – 14:00 L U N C H and NETWORKING | |
14:00 | Start of “New Horizons GIST-Meeting” (Separate agenda) |