I Lost My Son and Found My Purpose

September 6, 2023

We spoke with the founder of the first sarcoma organization in Bulgaria, Lidiya Vitanova, who lost her young son, Niki, to sarcoma. Lidiya talked to us about the sarcoma situation in her country as well as her motivation and goals for improving the outcomes of people diagnosed with sarcoma and other rare diseases.

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Facilitating Collaboration in Sarcoma Care

July 17, 2023
A photo of Prof. Dr. Bernd Kasper standing on a red bridge which is out of focus.

In this interview, SPAGN Communications Director Cory Archibald speaks with Dr. Bernd Kasper, to learn about the role of patient advocacy groups like SPAGN in strengthening global cooperation to improve patient outcomes.

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