patient involvement in research Archives - SPAGN - Sarcoma Patient Advocacy Global Network

Check It Out!

August 7, 2023

Sarcoma patient and patient advocate Roger Wilson shares his experience of finding a lump – what happened and what he learned.

When the Patient Becomes the Researcher

July 20, 2023

Dr. Sydney Stern, biomedical scientist and patient advocate, describes her personal journey as a patient with a rare tumor disease and her quest for answers through science. She calls for patients to get involved in research and outlines options for doing so.