Patient eCademies

September 6, 2016

Sarcomas are a diverse and relatively rare group of malignant tumors, originating in supportive and connective tissues such as bones, tendons, cartilage, muscle, and fat – the so called “mesenchymal cells”. They only account for slightly more than 1% of all cancer diagnoses in adults and for nearly 21% of all solid malignant cancers in…

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Follow up Bone

September 5, 2016

The objective of regular follow-up is to detect either local recurrence or metastatic disease at a time when early treatment is still possible. Examinations should include both a physical examination of the tumour site as well as assessment of the function and possible complications of any reconstruction. Also local imaging and chest X-ray or CT…

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Infographics

September 5, 2016

Infographics translate information into easy-to-understand visuals. Please feel free to use these infographics for your communication. What are sarcomas? Key facts about sarcomas (please download your preferred language: Englisch, French, German)                 Merken Merken Merken

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Group Locator

September 5, 2016

{loadposition map} This is a worldwide map of Sarcoma patient groups (incl. SPAEN member organisations). Please move your mouse over the countries to see listed patient groups and then click to see more details. Please click to take a look at all SPAEN Members. If you know a group which is not listed here, or…

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Become a Member

September 5, 2016

SPAEN welcomes every sarcoma, GIST or desmoid patient organisation worldwide, who pledge to conform our Code of Practice, as full member. Full members are entitled to vote at the annual general meeting (AGM). SPAEN also invites individuals who are interested in starting sarcoma, GIST or desmoid support groups in their own countries as well as…

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Our Members

September 5, 2016

The network only is as strong as its members. SPAEN welcomes every sarcoma, GIST or desmoid patient group and individuals interested in sarcomas worldwide to become part of our network and thus strengthen it.   Why join SPAEN? Enjoy information exchange with other members, receive SPAEN newsletters and briefings, an invitation to SPAEN’s annual meeting,…

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