Member activities

September 8, 2017

Our member organisations are very active in their countries – we are very proud to present a selection of what is happening for sarcoma and GIST patients in the world. We thank all our organisation for their outstanding commitment! July 2019 Friends of Max Newsletter with special focus on GIST Our – Sarcoma Patients EuroNet’s…

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Our Webinars at the SPAEN Advocacy Campus

January 24, 2017

There are a lot of open questions about sarcomas by patients and patient advocates or even healthcare professionals, but not everybody can attend a congress or a conference to seek answers. SPAEN therefore launched the series of webinars on the SPAEN Advocacy Campus: To tackle important issues and answer relevant questions, we invite renowned experts…

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Webinars (2)

January 24, 2017

SPAEN is happy to announce that our first webinars are on the way for late summer 2018! The role of radiotherapy in sarcomas & recent developmentsRick Haas, MD, PhD, Radiation-oncologist, The Netherlands Cancer Institute, The NetherlandsSeptember 19, 2018, 6 pm CET   Experiences with olaratumab in soft tissue sarcomaDr. Robin Jones, Medical Oncologist, Head of…

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7th SPAEN Conference 2016 in Warsaw/Poland

January 15, 2017

Learning, teaching, sharing and a great sense of community Once again, the community of patient advocates for sarcomas, GIST and desmoids have come together for another successful SPAEN Annual Conference from September 8-10, 2016. This year, Poland was the host country, welcoming all participants with great hospitality and warmth to its capital Warsaw. The three…

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