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SPAGN Annual Conference Registrations Are Now Open – Secure Your Spot Today!
Registration for SPAGN Annual Conference 2024 Is Now Open We are thrilled to announce that registration is now open for the SPAGN Annual Conference 2024, a radiant exchange of knowledge and inspiration for the global sarcoma community! Join us for this transformative event, meticulously crafted to facilitate learning, foster capacity building, and provide a unique…
Read MoreFrom Glasgow to Guyana
Anyone who has a sarcoma or a suspected sarcoma should be seen by sarcoma specialists. This is what we advocates say over and over again in the hope that patients will have better treatment outcomes. Yet in many countries of the world there is no doctor with such expertise. Every year, a Scotland-based orthopedic surgeon and sarcoma expert dedicates part of his leave to teaching and operating in countries where patients do not have access to a specialist surgeon. Here we tell the story of an amazing volunteer initiative.
Read MoreSubmissions open for 2023/24 Advocacy in Action Awards
Each year SPAGN awards special recognition to member groups advancing patient rights and improving patient support. The submissions are OPEN for 2023/2024 projects. Winners will be selected by a panel of judges and announced at the 2024 SPAGN Annual Conference in Rome.
Read MoreLIBRETTO-121: LOXO-292 (Selpercatinib) in Advanced Pediatric Solid & CNS Tumors
Treatment of Oral LOXO-292 (Selpercatinib) in Pediatric Patients with advanced solid tumors Agents: LOXO-292 Phase I/II Status Active, not recruiting Sponsor Loxo Oncology, Inc. (Eli Lilly) For further information please also consult ClinicalTrials.gov. This is a Phase 1/2 study of oral LOXO-292 in pediatric participants with an activating rearranged during transfection (RET) alteration and…
Read MorePBI-200 in NTRK-Fusion-Positive Solid Tumors
Treatment of PBI-200 in Subjects With NTRK-Fusion-Positive Advanced or Metastatic Solid Tumors Agents: PBI-200 Phase I/II Status Terminated Sponsor Pyramid Biosciences For further information please also consult ClinicalTrials.gov. This is a first-in-human, Phase 1/2 open-label, multicenter study of PBI-200 in NTRK-fusion-positive advanced or metastatic solid tumors. WHO is the trial for? Patients of…
Read MoreFLASH: Efficacy and Safety of L19TNF in Previously Treated Patients With Advanced Stage or Metastatic Soft-tissue Sarcoma
Treatment of Dacarbazine + L19TNF vs. Dacarbazine alone (as active comparator) in Previously Treated Patients With Advanced Stage or Metastatic Soft-tissue Sarcoma. Agents: Dacarbazine + L19TNF Phase II Status Active, not recruiting Sponsor Philogen S.p.A. For further information please also consult ClinicalTrials.gov. Open label, randomized, controlled phase II study preceded by a safety run-in…
Read MoreMANEUVER: Pimicotinib (ABSK021) for Tenosynovial Giant Cell Tumor
Treatment of Pimicotinib (ABSK021) for Tenosynovial Giant Cell Tumor (MANEUVER) Agents: Pimicotinib (ABSK021) Phase III Status Active, but not recruiting Sponsor Abbisko Therapeutics Co, Ltd For further information please also consult ClinicalTrials.gov. This is a Phase III Study of ABSK021 to Assess the Efficacy and Safety in Patients With Tenosynovial Giant Cell Tumor…
Read MoreFDA Approves Groundbreaking Treatment for Rare Desmoid Tumors: Ogsiveo Offers New Hope
Today, the U.S. Food and Drug Administration (FDA) has approved Ogsiveo (nirogacestat) tablets as the first therapy designed for adults with progressing desmoid tumors, a rare subtype of soft tissue sarcomas. Desmoid tumors, though non-cancerous, are locally aggressive, causing pain and impaired mobility. Traditionally, surgery was the go-to option, but with a high risk…
Read MoreUSA: Northwest Sarcoma Foundation
USA: Northwest Sarcoma Foundation Back to members Organization mission: Our mission is to provide hope, education, and support to anyone affected by Sarcoma in the Pacific Northwest while investing in research to improve cure rates. Contact Information Northwest Sarcoma Foundation 📧 www.nwsarcoma.org 📧 info@nwsarcoma.org Key Contacts Executive Director: Jo McNeal 📧 jomcneal@nwsarcoma.org General Information…
Read MoreBrazil: Desmóide Brasil | Associação Brasileira do Tumor Desmóide
Brazil: Desmóide Brasil | Associação Brasileira do Tumor Desmóide Back to members Organization profile: The Brazilian Desmoid Tumor Association began its activities in 2021, with the aim of welcoming diagnosed patients. When receiving a diagnosis of a rare disease, patients often feel alone in their journey. Our goal is to show…
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