Events & Projects
Previous Webinars
Knowledge Spots Knowledge Spot 2022: Gamma Secretase Inhibitors: New Paradigm in Desmoid Tumors? Joint webinar of SPAGN & Sarcoma Unit@University Hospital Mannheim, Germany Dec. 1, 2022, 5:00-6:00pm CET / 11am-12pm ET Medical and Scientific Highlights 2021 in GIST Feb. 9. 2022, 5:30-7:00pm CET / 11:30am-1pm EST Knowledge Spot 2022: Highlights in GIST 2021 Medical and…
Read MoreNew Horizons GIST 2020
New Horizons GIST 2020 Special Topic: Mutational Analysis in GIST as a guide for the right therapy – May 7, 2021 For several years now NEW HORIZONS GIST is the most important global platform for GIST patient advocates with a focus on discussing critical information about GIST that impacts the global GIST patient and medical…
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Events & Congresses
Sarcoma Patients EuroNet not only hosts a variety of events, but also participates in congresses and external events.It is our aim to represent the patients’ voice wherever suitable, necessary and potentially helpful to achieve our goals, foremost to improve the situation of sarcoma patients around the globe. Please read more here: 100 years Ewing…
Read MoreNew Horizons GIST
NEW HORIZONS GIST is the most important global annual conference for GIST patient advocates. At NEW HORIZONS GIST, patients from the global GIST patient community come together, can interact with top GIST experts, have access to state‐of‐the‐art medical and scientific information and can exchange best practice in patient advocacy among each other. The conference is…
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Education and training is crucial to many of the 7 SPAGN strategic objectives and is the basis for SPAGN‘s work with its member groups and patient advocates. It is our goal to enable our member groups to improve in organizing their groups, in becoming active advocates for sarcoma patients in their own country and to…
Read MoreCollaboration between CTOS and SPAGN
Kick-off of official collaboration between CTOS and SPAGN In 2022, SPAGN and the Connective Tissue Oncology Society (CTOS) officially started a collaboration to address common issues and challenges and to jointly find solutions for them. The focus of this collaboration is… to identify problems, challenges, and unmet medical needs in sarcoma management, find solutions to…
Read MoreEuro Ewing 2012
Trial for the Treatment of Newly Diagnosed Ewing’s Sarcoma Family of Tumours Agents: Different chemotherapy regimens Phase III Status Open, recruiting Sponsor University of Birmingham Further information: https://www.ucl.ac.uk/cancer/research/centres-and-networks/euro-ewing-consortium/clinical-trials/euro-ewing-2012/ee2012 WHO is the trial for? Patients with diagnosed Ewing’s sarcoma, primitive neuroectodermal tumour, soft tissue Ewing’s tumour Overall health status of the patient has…
Read MoreSPAEN Advocacy in Action Award 2019: The winners are…
Patient advocacy ensures that people are heard, take action and ultimately improve situations, achieve changes or help to fulfil unmet medical needs. The 12 projects that were entered for the “Sarcoma Advocacy in Action Award 2019” once again showed this impressively! All entries were fantastic and the jury had a hard job to decide…
Read More2020 SPAEN Annual Conference: 31 Jan – 2 Feb 2020, Milan/Italy
10th SPAEN Annual Conference in Milan, Italy: Global, diverse, informative and collaborative From January 31-February 2, the 10th SPAEN Annual Conference was held in Milan, Italy, once again in conjunction with the expert conference “ESMO Sarcoma & GIST Symposium 2020”. With more than 70 patient advocates from 22 countries on 4 continents, more than 25…
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