Previous Webinars

Knowledge Spots Knowledge Spot 2022: Gamma Secretase Inhibitors: New Paradigm in Desmoid Tumors? Joint webinar of SPAGN & Sarcoma Unit@University Hospital Mannheim, Germany Dec. 1, 2022, 5:00-6:00pm CET / 11am-12pm ET Medical and Scientific Highlights 2021 in GIST Feb. 9. 2022, 5:30-7:00pm CET / 11:30am-1pm EST Knowledge Spot 2022: Highlights in GIST 2021 Medical and…

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New Horizons GIST 2020

New Horizons GIST 2020 Special Topic: Mutational Analysis in GIST as a guide for the right therapy – May 7, 2021 For several years now NEW HORIZONS GIST is the most important global platform for GIST patient advocates with a focus on discussing critical information about GIST that impacts the global GIST patient and medical…

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Events & Congresses

Sarcoma Patients EuroNet not only hosts a variety of events, but also participates in congresses and external events.It is our aim to represent the patients’ voice wherever suitable, necessary and potentially helpful to achieve our goals, foremost to improve the situation of sarcoma patients around the globe.  Please read more here:   100 years Ewing…

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New Horizons GIST

NEW HORIZONS GIST is the most important global annual conference for GIST patient advocates. At NEW HORIZONS GIST, patients from the global GIST patient community come together, can interact with top GIST experts, have access to state‐of‐the‐art medical and scientific information and can exchange best practice in patient advocacy among each other. The conference is…

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Webinars

Education and training is crucial to many of the 7 SPAGN strategic objectives and is the basis for SPAGN‘s work with its member groups and patient advocates. It is our goal to enable our member groups to improve in organizing their groups, in becoming active advocates for sarcoma patients in their own country and to…

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Collaboration between CTOS and SPAGN

Kick-off of official collaboration between CTOS and SPAGN In 2022, SPAGN and the Connective Tissue Oncology Society (CTOS) officially started a collaboration to address common issues and challenges and to jointly find solutions for them. The focus of this collaboration is… to identify problems, challenges, and unmet medical needs in sarcoma management, find solutions to…

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Euro Ewing 2012

Trial for the Treatment of Newly Diagnosed Ewing’s Sarcoma Family of Tumours Agents: Different chemotherapy regimens Phase  III Status  Open, recruiting Sponsor University of Birmingham   Further information: https://www.ucl.ac.uk/cancer/research/centres-and-networks/euro-ewing-consortium/clinical-trials/euro-ewing-2012/ee2012   WHO is the trial for?   Patients with diagnosed Ewing’s sarcoma, primitive neuroectodermal tumour, soft tissue Ewing’s tumour Overall health status of the patient has…

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SPAEN Annual Conference HYBRID 2022

June 24-26, Frankfurt/Germany The SPAEN Annual Conference 2022 was held as a hybrid event from 24-26 June 2022 in Frankfurt, Germany. For the first time since the start of the pandemic in March 2020, the event took place as a face-2-face meeting, allowing a limited number of participants to meet in person, to exchange experiences,…

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Congratulations to the SPAEN Advocacy in Action Award Winners 2021

SPAEN Advocacy in Action Award 2021 Winners announced during SPAEN Conference 2022 Patient advocacy ensures that people are heard, take action and ultimately improve situations, achieve changes or help to fulfil unmet medical needs. We believe it is time to shout out about how important patient advocacy in sarcomas is – for patients, caregivers, healthcare…

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