Blog & News

Would you like to know more about what sarcoma advocates around the world are doing and working on?

We at Voices of Sarcoma want to introduce you to the advocates from our member groups.

Recently, we interviewed Kai Pilgermann from the German Sarcoma Foundation.

Focusing on the goals we share with our oncologist — treatment success and good quality of life — can help us to overcome communication challenges.

We can also adopt strategies for optimizing communication. These strategies involve a set of good habits and effective behaviors.

Here are eight tips for improving communication.

If you are a sarcoma patient, a physician, or a patient advocate, you know that medical encounters are sometimes frustrating and dissatisfying for those involved.

Communication can go wrong in many ways, both big and small.

This is particularly unfortunate when it happens in encounters between patients and oncologists, as there is so much at stake.

We hear a lot about patient involvement in research these days. It’s a hot topic. But what does it actually mean?

And more importantly, what benefits does it bring?

How was 2022 for your organization? What accomplishments are you proud of?

We at SPAGN are looking back at what we have done in the past year to impact the treatment and survival of sarcoma patients. We also want to look ahead to our plans for the near future.