Welcome to Sarcoma Patient Global Advocacy Network!
Sarcoma Patient Advocacy Global Network (SPAGN) is the global network of national Sarcoma Patient Advocacy Organizations. Today, approx. 60 member groups from 5 continents gather under the umbrella of SPAGN, providing a common, international and influential patient voice for sarcoma patients around the globe. SPAGN is working to improve the treatment and care of sarcoma patients through information and support, and by increasing the visibility of sarcoma with policymakers and the public.
Register now: SPAGN Annual Conference & New Horizons GIST 2023
What are your priorities in bone sarcoma research?
Global TGCT consensus paper published
SPAGN Annual Conference & New Horizons GIST 2023:
Hand in Hand for the first time
Recording available: SPAGN Knowledge Spot – Gamma Secretase Inhibitors in Desmoid Tumors
SPAGN Annual Conference 2023 – Save-the-Date
Improving Communication between Patients and Oncologists, Part 2: Tips for Getting it Right
Improving Communication between Patients and Oncologists, Part 1: Rethinking Our Roles
The Value of Patient Involvement in Research
Looking back on 2022 and ahead to 2023
How to Create High-quality Information Materials for Patients, Part 1: Checklist of Key Steps
Advocacy 2.0: The Evolving Role of Advocates in Rare Cancers
SPAGN @CTOS 2022
Working together, making a difference.
SPAGN and Members
The network only is as strong as its members. SPAGN welcomes every sarcoma, GIST or desmoid patient group and individuals interested in sarcomas worldwide to become part of our network and thus strengthen it.
Events and Projects
SPAGN not only hosts a variety of events, but also participates in congresses and external events. It is our aim to represent the patients' voice wherever suitable, necessary and potentially helpful to achieve our goals, foremost to improve the situation of sarcoma patients around the globe. Find out more in our section "Events & Projects"
Advocacy & Tools
Our member organizations are very active in their countries and we try to support them wherever possible, and even more so in the future. Please stay tuned, there's more to come!
Experts & Research
Sarcomas are rare. It is therefore very important to find physicians or even better multidisciplinary teams who have experience with this disease. SPAGN is setting up alist of sarcoma centers or centers with sarcoma expertise per country. Find out more here.
Sarcoma Facts & Figures
Sarcomas are a diverse and relatively rare group of malignant tumors. The vast majority of diagnosed sarcomas are soft tissue sarcomas, while malignant bone tumors make up just over 10%.
Find out more about Soft Tissue Sarcomas, Bone Sarcomas, GIST and Desmoid Tumors in our section "Sarcoma Facts & Figures"
Blog, News and Newsletter
Please visit our News section or our SPAGN Blog "Voices of Sarcoma". To get regular information, please sign up for our Newsletter today!