SPAEN is an international network of soft tissue sarcoma, bone cancer, GIST and desmoid patient advocacy groups. The association is working to support sarcoma research and to improve diagnosis, treatment and care of sarcoma patients in close collaboration with clinical sarcoma experts, scientific researchers, pharmaceutical industry and other stakeholders.
SPAEN is registered as an association under German law in Friedberg/Germany – registration-no. VR 2609. Registered office/legal entity: Sarcoma Patients EuroNet e.V., Untergasse 36, 61200 Wölfersheim, Germany.
Please find more information about SPAEN in the SPAEN statues (Last update: September 2016)