Collaboration between CTOS and SPAGN


Kick-off of official collaboration between CTOS and SPAGN
In 2022, SPAGN and the Connective Tissue Oncology Society (CTOS) officially started a collaboration to address common issues and challenges and to jointly find solutions for them.
The focus of this collaboration is...
- to identify problems, challenges, and unmet medical needs in sarcoma management, find solutions to improve the situation in collaboration with all relevant stakeholders
- to raise awareness for sarcomas in order to facilitate early diagnosis
- to support and strengthen treatment by specialist teams using consensus guidelines
- to deliver research that is adequately funded, coordinated and patient-centered
From these fields of interest, the following shared goals have been defined:
- Raise awareness of sarcoma
- Identify and advance relevant knowledge
- Define obstacles and challenges to improving sarcoma care
- Advocate for research to deliver benefit to people with sarcoma
- Contribute evidence-based consensus publications available worldwide
General Principles of Our Cooperation
Common objective: Ensure positive, constructive collaboration between CTOS & SPAGN
- The relationship between CTOS & SPAGN will be positive and mutually beneficial
- At inflection points, the patient-voice will provide useful insights to meet our mutual goals
- Research and clinical questions relevant to the patient community will be identified by SPAGN and put forward as potential collaborative projects