Sarcoma Intelligent Specialist Network and How We Got Here

A graphic promoting a blog post by Sarcoma Patient Advocacy Global Network. The caption reads "Sarcoma Intelligent Specialist Network and How We Got Here." Included is a photo of SPAGN's Honorary President Roger Wilson presenting this paper at CTOS 2023 in Dublin.

One of the first things a newly diagnosed sarcoma patient is told when they contact a patient support group is that they must be treated by expert doctors in a specialist centre. But no one knows how to judge whether there are experts in a centre or not. SPAGN therefore set out a year ago to work towards a universally acceptable definition of an expert centre. Such a definition would allow new patients to get a quick understanding, advocacy groups to gain deeper knowledge of their country’s resources, and doctors in centres that are developing their expertise to have a clear understanding of what we as patients expect.

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CTOS 2023 Highlights: Patient Advocacy Lounge Leaves a Lasting Impression

The Connective Tissue Oncology Society held its annual conference in Dublin, Ireland from November 1-4, 2023. The conference, an opportunity for the global sarcoma community to come together, has left a lasting impression: The role of patient advocates in this community is growing and SPAGN’s Patient Advocacy Lounge was a huge success.

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Patient Advocates Meet the World’s Sarcoma Specialists in November

A graphic promoting a blog post from Sarcoma Patient Advocacy Global Network, with a faded photo of the Dublin Convention Center in the background.

The oncology community is preparing to gather for the annual conference of the Connective Tissue Oncology Society (CTOS) in Dublin from November 1-4. This pivotal event brings together oncologists, researchers, and patient advocates dedicated to the common goal of advancing the understanding and treatment of these rare cancers. We take a closer look at the importance of the CTOS-SPAGN partnership and its global impact going forward.

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