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USA: Liposarcoma Support Network Back to members   Organisation Profile The Liposarcoma Support Network (LSN) – Program by the Life Raft Group  The Liposarcoma Support Network (LSN) is committed to enhancing the survival and quality of life for people living with liposarcoma through patient-powered research, education and empowerment, and global advocacy efforts. Our vision is…

Agents: FOG-001 Phase I/II Status Recruiting Sponsor Parabilis Medicines, Inc.   For further information please also consult https://clinicaltrials.gov/study/NCT05919264 This phase 1/2 (first in human), open-label, non-randomized, dose escalation and dose expansion study evaluates the safety, tolerability, PK, pharmacodynamics, and antitumor activity of FOG-001 in patients with advanced or metastatic solid tumors likely or known to have…

First-in-Human Study of ADCE-D01 in Soft Tissue Sarcoma (ADCElerate1) Agents: ADCE-D01 Phase I/II Status Recruiting Sponsor Adcendo ApS   For further information please also consult https://www.clinicaltrials.gov/study/NCT06797999 ADCElerate1 is a first-in-human, phase 1/2, open-label, dose escalation and expansion study to evaluate the safety, pharmacokinetics, and antitumor activity of ADCE-D01 in patients with metastatic and/or unresectable soft tissue sarcoma. ADCE-D01…

iEuroEwing is a Phase III international clinical trial to optimize treatment for Ewing sarcoma patients. Agents: Systemic and local therapies Phase III Status Recruiting Sponsor Co-funding of national funding bodies   Further information can be found here.   WHO is the trial for? The trial is open for patients diagnosed with Ewing sarcoma or Ewing-like…

USA: Sarcoma Alliance  Back to members Organisation Profile The Sarcoma Alliance strives to improve the lives of people affected by sarcoma through accurate diagnosis, improved access to care, guidance, education and support. Suzanne Leider founded the Sarcoma Alliance in 1999 in the living room of her home with the mantra “guidance, education, and support” in…

  USA: Sarcoma Coalition  Back to members Organisation Profile The Sarcoma Coalition is comprised of Patient Advocacy organizations and foundations that represent a cross-section of sarcoma subtypes or a pan-sarcoma group. There is no individual membership. The membership of the Coalition has a designated representative to participate in the Roundtable meetings of the Sarcoma Coalition…

Uganda: Uganda Alliance of Patients’ Organizations (UAPO) Back to members Organisation’s profile  UAPO is a patient-driven not-for-profit civil society organization founded in 2011. UAPO leads the patients voice through membership,collaboration and partnerships with other patient and advocacy organizations; healthcare professionals, private sector entities,pharmaceutical industry; regulatory authorities, policy makers, NGOs, academics,researchers, consumer organizations; patient advocacy groups;…