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GD2-SADA: 177Lu-DOTA
GD2-SADA: 177Lu-DOTA in GD2-Positive Tumors Agent: GD2-SADA, 177Lu-DOTA Phase I Status Recruiting Sponsor Y-mAbs Therapeutics For further information please also consult https://clinicaltrials.gov/study/NCT05130255 Patients with Sarcoma, Small Cell Lung Cancer, High Risk Neuroblastoma, or Malignant Melanoma will be treated with GD2-SADA:177Lu-DOTA complex. The treatment uses a two-step approach (pre-targeted radioimmunotherapy). GD2-SADA – a specially designed…
Read MoreATLAS
Actinium Therapy for Late-stage Aggressive Sarcomas (ATLAS) Agent: [Ac-225] RTX-2358, Diagnostic test: [Cu64]LNTH-1363S Phase I/II Status Recruiting Sponsor Ratio Therapeutics, Inc. For further information please also consult https://www.clinicaltrials.gov/study/NCT07071727 This is a first-in-human, Phase 1/2, open-label, dose-escalation and expansion study to evaluate the safety, tolerability, dosimetry, biodistribution, pharmacokinetics, and preliminary anti-tumor activity of [Ac-225] RTX-2358…
Read MoreWhen standard care is not enough: Swedish hospital runs Whole Genome Sequencing routinely for sarcoma
Ahead of this year’s Annual Conference of SPAGN in Stockholm from 1- 3 May, the Swedish patient advocate Magnus Carlsson shares exciting developments in his country regarding genomic profiling of tumours suspicious of sarcoma. He explains why he believes that running Whole Genomic Sequencing routinely in the diagnostic process is an investment rather than an expense.
Read MoreUSA: The Ewing Sarcoma Institute
USA: The Ewing Sarcoma Institute Back to members Organization profile: The mission of the Ewing Sarcoma Institute: The Ewing Sarcoma Institute is dedicated to radically improving outcomes for Ewing Sarcoma patients by uniting the global community to accelerate collaborative scientific discovery and development of breakthrough treatments. Contact Information The Ewing Sarcoma Institute 5433 La Sierra…
Read MoreWECAN Patient Experience Data (PED) online course launching on World Cancer Day
Are you part of a patient organisation that wants to shape healthcare decisions, but doesn’t always know where to start? On 4 February, WECAN Foundation will launch a free online course on Patient Experience Data (PED) for patients, advocates, patient leaders but also people interested in generating PED within the cancer advocacy work. This launch comes at a time when patient experience and quality of life are receiving…
Read MoreROGER EXPLORES… Ultrasound
In the panoply of new technologies for treating cancer ultra-sound barely gets a mention. In this blog post Roger Wilson discovers how it is developing as a treatment. He explains why he believes this a worthwhile process to observe.
Read More🧪 New study arm in rEECur trial with Trabectedin for relapsed Ewing sarcoma
Birmingham/Manchester, UK, January 21, 2026 Ewing sarcoma, a rare bone and soft tissue cancer in children and young adults has poor outcomes at relapse. The drug trabectedin offers a hopeful new option for treatment. Patient advocates have collaborated with investigators and the manufacturer of trabectedin, to open a new treatment arm containing trabectedin within rEECur,…
Read MoreUSA: The Desmoid Project
USA: The Desmoid Project Back to members Organization Profile, Mission, and Activities The Desmoid Project (TDP) is a patient-founded, trauma-informed nonprofit organization dedicated to supporting individuals and families affected by desmoid tumors. Mission Statement: The organization’s mission is to support every person impacted by desmoid tumors through compassionate care, trauma-informed mental health services, and community…
Read MoreTanzania: Feliciana Mshanga Memorial Cancer Foundation (FMMCF)
Tanzania: Feliciana Mshanga Memorial Cancer Foundation (FMMCF) Back to members Legal Status & Location: Registered nonprofit organization under the laws of Tanzania Registration No: 00NGO/R/9012 Headquarters: Dar es Salaam, United Republic of Tanzania Organizational Profile: The Feliciana Mshanga Memorial Cancer Foundation is a patient-centered nonprofit organization working to improve cancer prevention, early detection,…
Read MoreUSA: The Bardo Foundation
USA: The Bardo Foundation Back to members Organisation Profile The Bardo Foundation is dedicated to transforming the landscape of outcomes for children and young people diagnosed with osteosarcoma, a rare and aggressive bone cancer that most commonly affects adolescents. Inspired by the experience of the founders’ son, Bernardo (“Bardo”), who was diagnosed with osteosarcoma…
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