Uncategorized-EN

In collaboration with the Fondazione IRCCS Istituto Nazionale dei Tumori, the Desmoid Foundation Italy is launching a survey to study the correlation between desmoid tumors and pregnancy. The results of this study will help to understand how desmoid tumors behave DURING pregnancy with the aim of improving the future of our patients who dream of…

  Professor Winette van der Graaf, The Netherlands, has been elected as new EORTC President-Elect from 2021-2024 – our heartfelt congratulations to a dedicated and enthusiastic #sarcoma expert!   Read more: https://bit.ly/2TQC8o7

Project: Desmoid and fertility Who is it for and what is it about? In collaboration with IRCCS NATIONAL TUMOR INSTITUTE FOUNDATION, we are spreading a questionnaire to study the impact of a diagnosis of desmoid tumor on the lives of women during their fertility age. The results of this study will help understand how desmoid…

July is the month of #SarcomaAwareness! We at SPAEN fight for a better situation for sarcoma, GIST, bonecancer and desmoid patients – together with our member groups, patients & advocates, experts & healthcare professionals. Stronger together!! We are here for you!    “Sarcoma Awareness Month 2020” What are sarcomas? A sarcoma is a cancer which…

13th of July is GIST Awareness Day, and SPAEN is encouraging everyone to help bring attention to GIST and other rare cancers. The theme of GIST Awareness Day this year is HOPE! 2020 brought a global health crisis that has challenged GIST patients. This year’s GIST Awareness Day is dedicated to Nikhil Guhagarkar, our beloved…

  The updated ESMO-EURACAN-GENTURIS (European Society for Medical Oncology; European Reference Network for Rare Adult Solid Cancers; European Reference Network for Genetic Tumour Risk Syndromes) Clinical Practice Guidelines for Soft Tissue and Visceral Sarcomas have been published in Annals of Oncology at 22.7.2021. Please find them here: https://www.annalsofoncology.org/article/S0923-7534(21)02184-0/fulltext

  The updated ESMO-EURACAN-GENTURIS (European Society for Medical Oncology; European Reference Network for Rare Adult Solid Cancers; European Reference Network for Genetic Tumour Risk Syndromes) Clinical Practice Guidelines for Soft Tissue and Visceral Sarcomas have been published in Annals of Oncology at 22.7.2021. Please find them here: https://www.annalsofoncology.org/article/S0923-7534(21)02184-0/fulltext

Medical societies such as the European Society of Medical Oncology (ESMO) in Europe or the National Comprehensive Cancer Network (NCCN) create guidelines which outline the standards of care for different types of cancer – among them guidelines for soft tissue sarcoma, bone sarcoma and GIST. These guidelines provide recommendations about diagnosis, treatment and follow-up for…

End of September, a new therapy option for GIST patients with D842V mutation was approved for the EU: Avapritinib (Ayvakyt®) from Blueprint Medicines is a highly selective tyrosine kinase inhibitor. It is directed against the D842V mutation in exon 18, which has been shown to be resistant to all drugs available to date. The approval…