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Backgrounder Generics
Generics have been part of the prescriptions in cancer therapy for quite some time now. And the numbers grow: According to recent figures mentioned in Cancer Work in a total global oncology drugs market approaching $100 billion, revenues from generics are growing at twice the rate of the market as a whole. They will reach…
Read MoreBackgrounder Immuno-Oncology
Immuno-oncology (IO) therapy is a new (and old) way to treat cancer by activating your immune system in the hope that it will attack your tumour. One of the earliest treatments for cancer was a kind of immune therapy. Coley’s Toxins was a soup of bacterial toxins that was injected directly into tumours over a…
Read MoreSarcoma Reports
Find out about the current developments in sarcoma care and diagnoses and what SPAEN does to improve the daily lives of sarcoma patients.
Read MoreOur Work
Sarcoma Patients EuroNet (SPAEN), the International Network of Sarcoma, GIST and Desmoid Patient Advocacy Groups was founded in April 2009. The organisation was born from a very strong desire among various national patient groups to network, cooperate and share materials, knowledge and experiences. Acting in partnership with clinical sarcoma experts, scientific researchers, pharmaceutical industry and…
Read MoreSarcoma Research
Sarcoma Research
Clinical studies are an essential step in the development of novel treatment methods for cancer and other diseases. Especially in rare cancers like sarcomas, clinical studies are an important component of treatment concepts, because here the standard forms of therapy are often limited. Fostering Age Inclusive Research: SPAEN supports the Accelerate Working Group …
Read MoreSarcoma Expertise
Sarcomas, being so rare and complex, belong in the hands of experts! Please find below some guidance on where to find information about diagnosis, treatment and care of sarcomas, but also about current developments in establishing European Reference Networks (ERNs) in order to provide specialist care across Europe.
Read MoreTraining Courses
Patient Community
SPAEN is involved in a number of advocacy activities from raising public awareness of the challenges of sarcomas to advocating for equal access to promising new therapies to encouraging the establishment of sarcoma patient organizations in countries where they don’t yet exist. SPAEN representatives therefore sit on a range of advisory boards, committees and initiatives…
Read MoreNetworking
Why is it so important to collaborate? Sarcomas are rare and are also difficult to diagnose and treat. This leads to many and varying challenges for sarcoma patients, compared with more common cancers. Collaboration can be challenging. Partners with differing priorities and interests can gain strength from finding their common ground, sharing resources and working…
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