The SPAEN Sarcoma Research Group

July 18, 2019

Research in sarcomas needs to become more patient-centric! {loadmoduleid 124} We feel that research decision making sometimes depend on other reasons than actual needs and most important questions for patients. Therefore, we would like to work towards developing a strategy and clear direction to ultimately improve outcomes for sarcoma patients – in a collaborative effort…

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SPAEN supports cancer/sarcoma patients from Ukraine with a donation of 10.000 Euro

July 18, 2019

  Wölfersheim/Germany, March 15, 2022 The current situation in Ukraine is a humanitarian catastrophe and we strongly condemn this unjustified war of aggression against Ukraine by Russian’s president Wladimir Putin. As a global organization, Sarcoma Patients EuroNet Assoc. (SPAEN) stands in solidarity with all Ukrainians. However, this situation of war is even worse for cancer…

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AIAA Winners 2018

February 2, 2019

SPAEN Advocacy in Action Award 2018: Winners announced Patient advocacy ensures that people are heard, take action and ultimately improve situations, achieve changes or help to fulfil unmet medical needs. The projects that were entered for the “Sarcoma Advocacy in Action Award 2018” once again showed this impressively! All entries were fantastic and the jury…

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AIAA Winners 2017

February 10, 2018

1st SPAEN Advocacy in Action Award for best projects in sarcoma patients advocacy was awarded We are very happy to have received submissions of outstanding projects and initiatives for our SPAEN Advocacy in Action Award 2017. The best projects have been awarded by a jury of 8 members consisting of patient advocates and experts. Those…

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Member activities

September 8, 2017

Our member organisations are very active in their countries – we are very proud to present a selection of what is happening for sarcoma and GIST patients in the world. We thank all our organisation for their outstanding commitment! July 2019 Friends of Max Newsletter with special focus on GIST Our – Sarcoma Patients EuroNet’s…

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Our Webinars at the SPAEN Advocacy Campus

January 24, 2017

There are a lot of open questions about sarcomas by patients and patient advocates or even healthcare professionals, but not everybody can attend a congress or a conference to seek answers. SPAEN therefore launched the series of webinars on the SPAEN Advocacy Campus: To tackle important issues and answer relevant questions, we invite renowned experts…

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Webinars (2)

January 24, 2017

SPAEN is happy to announce that our first webinars are on the way for late summer 2018! The role of radiotherapy in sarcomas & recent developmentsRick Haas, MD, PhD, Radiation-oncologist, The Netherlands Cancer Institute, The NetherlandsSeptember 19, 2018, 6 pm CET   Experiences with olaratumab in soft tissue sarcomaDr. Robin Jones, Medical Oncologist, Head of…

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