Uncategorized-EN

            The winners of the SPAEN Advocacy in Action Award 2020 have been announced! We congratulate them for their fantastic work:– V Care / SPANDAN, India– The Bone Cancer Research Trust, UK– The Polish Sarcoma and Melanoma Group Learn more about the winning projects, about all applications and about the…

COVID-19 and the fact that you as cancer patients and survivors are considered a “risk group” causes a lot of uncertainties: A lot of you feel left alone with your fears and questions. However, many of our national patient advocacy groups for sarcoma, GIST and desmoid patients keep on providing support and information to you…

In collaboration with the Fondazione IRCCS Istituto Nazionale dei Tumori, the Desmoid Foundation Italy is launching a survey to study the correlation between desmoid tumors and pregnancy. The results of this study will help to understand how desmoid tumors behave DURING pregnancy with the aim of improving the future of our patients who dream of…

  Professor Winette van der Graaf, The Netherlands, has been elected as new EORTC President-Elect from 2021-2024 – our heartfelt congratulations to a dedicated and enthusiastic #sarcoma expert!   Read more: https://bit.ly/2TQC8o7

Project: Desmoid and fertility Who is it for and what is it about? In collaboration with IRCCS NATIONAL TUMOR INSTITUTE FOUNDATION, we are spreading a questionnaire to study the impact of a diagnosis of desmoid tumor on the lives of women during their fertility age. The results of this study will help understand how desmoid…

July is the month of #SarcomaAwareness! We at SPAEN fight for a better situation for sarcoma, GIST, bonecancer and desmoid patients – together with our member groups, patients & advocates, experts & healthcare professionals. Stronger together!! We are here for you!    “Sarcoma Awareness Month 2020” What are sarcomas? A sarcoma is a cancer which…

13th of July is GIST Awareness Day, and SPAEN is encouraging everyone to help bring attention to GIST and other rare cancers. The theme of GIST Awareness Day this year is HOPE! 2020 brought a global health crisis that has challenged GIST patients. This year’s GIST Awareness Day is dedicated to Nikhil Guhagarkar, our beloved…

  The updated ESMO-EURACAN-GENTURIS (European Society for Medical Oncology; European Reference Network for Rare Adult Solid Cancers; European Reference Network for Genetic Tumour Risk Syndromes) Clinical Practice Guidelines for Soft Tissue and Visceral Sarcomas have been published in Annals of Oncology at 22.7.2021. Please find them here: https://www.annalsofoncology.org/article/S0923-7534(21)02184-0/fulltext

  The updated ESMO-EURACAN-GENTURIS (European Society for Medical Oncology; European Reference Network for Rare Adult Solid Cancers; European Reference Network for Genetic Tumour Risk Syndromes) Clinical Practice Guidelines for Soft Tissue and Visceral Sarcomas have been published in Annals of Oncology at 22.7.2021. Please find them here: https://www.annalsofoncology.org/article/S0923-7534(21)02184-0/fulltext