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Clinical studies are an essential step in the development of novel treatment methods for cancer and other diseases. Especially in rare cancers like sarcomas, clinical studies are an important component of treatment concepts, because here the standard forms of therapy are often limited.   Fostering Age Inclusive Research: SPAEN supports the Accelerate Working Group  …

Sarcomas, being so rare and complex, belong in the hands of experts! Please find below some guidance on where to find information about diagnosis, treatment and care of sarcomas, but also about current developments in establishing European Reference Networks (ERNs) in order to provide specialist care across Europe.

SPAEN is involved in a number of advocacy activities from raising public awareness of the challenges of sarcomas to advocating for equal access to promising new therapies to encouraging the establishment of sarcoma patient organizations in countries where they don’t yet exist. SPAEN representatives therefore sit on a range of advisory boards, committees and initiatives…

Why is it so important to collaborate? Sarcomas are rare and are also difficult to diagnose and treat. This leads to many and varying challenges for sarcoma patients, compared with more common cancers. Collaboration can be challenging. Partners with differing priorities and interests can gain strength from finding their common ground, sharing resources and working…

By Markus Wartenberg Cancer patient organisations around the world carry out enormously important work on behalf of patients and their families. Without them, the standard of care and support available to cancer patients would be severely compromised in some countries. Doctors and nurses increasingly find themselves in the position where they cannot give patients the…

Sarcomas are rare and complex conditions which make specialized care mandatory. However, due to both the scarcity of expertise and the scattering of small patient populations across the EU, it can be challenging to provide this highly specialized care for all patients.   So-called “European Reference Networks” (ERNs) pool the expertise among EU member states…

The constant news about the coronavirus can be worrying, especially for people with cancer and their families. Cancer and its treatment can lower your ability to fight infection. We have therefore put together information and resources about the coronavirus in general and especially for cancer patients, including specific (though very limited) information for sarcoma and GIST…