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International Top 10 Recommendations For Newly Diagnosed GIST Patients
For national GIST Patient Support and Advocacy groups: Please translate this list into your national language and provide the document for GIST-Patients on your website. Thank you very much! International “Top-10-Recommendations” for newly diagnosed GIST-Patients. 1. Gastrointestinal stromal tumours (GISTs) belong to the group of sarcomas; they are uncommon tumours of the digestive (gastrointestinal; GI)…
Read MoreQuality of Life for Sarcoma Patients
SPAEN Advocacy in Action Award 2018: Apply now!
Launch of a Sarcoma Patientgroup in India: SPANDAN
Find Out More About SPAEN National Member Groups
Backgrounder Generics
Generics have been part of the prescriptions in cancer therapy for quite some time now. And the numbers grow: According to recent figures mentioned in Cancer Work in a total global oncology drugs market approaching $100 billion, revenues from generics are growing at twice the rate of the market as a whole. They will reach…
Read MoreBackgrounder Immuno-Oncology
Immuno-oncology (IO) therapy is a new (and old) way to treat cancer by activating your immune system in the hope that it will attack your tumour. One of the earliest treatments for cancer was a kind of immune therapy. Coley’s Toxins was a soup of bacterial toxins that was injected directly into tumours over a…
Read MoreSarcoma Reports
Find out about the current developments in sarcoma care and diagnoses and what SPAEN does to improve the daily lives of sarcoma patients.
Read MoreOur Work
Sarcoma Patients EuroNet (SPAEN), the International Network of Sarcoma, GIST and Desmoid Patient Advocacy Groups was founded in April 2009. The organisation was born from a very strong desire among various national patient groups to network, cooperate and share materials, knowledge and experiences. Acting in partnership with clinical sarcoma experts, scientific researchers, pharmaceutical industry and…
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