International Top 10 Recommendations For Newly Diagnosed GIST Patients

For national GIST Patient Support and Advocacy groups: Please translate this list into your national language and provide the document for GIST-Patients on your website. Thank you very much! International “Top-10-Recommendations” for newly diagnosed GIST-Patients. 1. Gastrointestinal stromal tumours (GISTs) belong to the group of sarcomas; they are uncommon tumours of the digestive (gastrointestinal; GI)…

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Backgrounder Generics

Generics have been part of the prescriptions in cancer therapy for quite some time now. And the numbers grow: According to recent figures mentioned in Cancer Work in a total global oncology drugs market approaching $100 billion, revenues from generics are growing at twice the rate of the market as a whole. They will reach…

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Backgrounder Immuno-Oncology

Immuno-oncology (IO) therapy is a new (and old) way to treat cancer by activating your immune system in the hope that it will attack your tumour. One of the earliest treatments for cancer was a kind of immune therapy. Coley’s Toxins was a soup of bacterial toxins that was injected directly into tumours over a…

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Sarcoma Reports

Find out about the current developments in sarcoma care and diagnoses and what SPAEN does to improve the daily lives of sarcoma patients.

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Our Work

Sarcoma Patients EuroNet (SPAEN), the International Network of Sarcoma, GIST and Desmoid Patient Advocacy Groups was founded in April 2009. The organisation was born from a very strong desire among various national patient groups to network, cooperate and share materials, knowledge and experiences. Acting in partnership with clinical sarcoma experts, scientific researchers, pharmaceutical industry and…

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