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Italy: Fondazione Paola Gonzato-Rete Sarcoma ETS GIST  Back to members Organisation Profile Trust Paola Gonzato-Rete Sarcoma Onlus is the new denomination of Associazione Paola per i tumori muscolo-scheletrici, which was founded in 2008 by Ornella Gonzato in Udine, in memory of her sister Paola. This legal transformation does not change at all the final goal which…

Israel: Israeli GIST Patients Organisation  Back to members Organisation Profile The Israeli GIST Patients Organization is operating since Oct. 2007 in order to bring GIST patients the most updated information about new drugs, new research and supporting GIST patients and their families. We are also increasing the awareness of Health Authorities in Israel on the…

France: SOS Desmoide France Back to members Organisation Profile  Its aim: like most PAGs, it is to develop the awareness of this disease, stimulate research, inform & support patients. It started in 1998.  The core of our organisation lies in a team of about ten persons who meet every month. It is worth noting that the…

  Germany:  Deutsche Sarkom-Stiftung/German Sarcoma Foundation Back to members Organisation Profile The Foundation was launched with the aim of advancing our understanding of oncology, specifically relating to sarcomas, gastrointestinal stromal tumours (GIST) and desmoid tumours, as well as other rare soft tissue and bone tumours (e. g. tenosynovial giant cell tumours (TGCT)/pigmented villonodular synovitis (PVNS)…

  Germany: SOS Desmoid Back to members Organisation Profile sos-desmoid was founded as a charitable organization on 21st November 2009 in Mannheim, Germany. It was initiated by Prof. Peter Hohenberger (an oncologist and researcher of desmoid tumors) of the university of Mannheim and Miss Anja Herrmann (a psychologist) from Berlin and several students of psychology…

  India: SPANDAN (VCare) Back to members Group Profile V Care Foundation is a voluntary support group dedicated to providing free help, hope, awareness and education to cancer patients and their families through outreach programs and services that improve the quality of their lives. V Care is a voluntary organization. Honorary volunteers group is a…

  India: Friends of Max Back to members Group Profile Friends of Max (www.friendsofmax.info) is the Support Group arm of The Max Foundation in India and is registered as a Public Charitable Trust. Its objective is to increase awareness and act as a patient support/advocacy group for underserved chronic myeloid leukaemia (CML) and gastrointestinal stromal…

Hungary: Recovering Together Association/Gyógyulj Velünk Egyesület Back to members Organisation Profile The Recovering Together Association was created to raise awareness of cancer and to support those affected in all life situations. How can we help? We organize lectures in talks with oncologists, other specialists, oncopsychologists, dietitians, physiotherapists, nurses. We publish up-to-date and authentic information on…