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Working at SPAGN: We are hiring!
Communications Specialist (m/f/d) Part-time or freelance, remotely You… …are an experienced multi-channel communications specialist with interest or experience in patient advocacy and/or medicine, oncology, healthcare or pharma? … like to work independently and flexibly in an international virtual team? … are hands-on, creative and want to help shaping the future of an established and…
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Read MoreThe SPAGN Blog
01 Sep A research agenda driven by patients – Sarcoma UK to fund £2 million this year Advances in understanding sarcoma can change the lives of patients – particularly, if the research is result of the efforts and energy of people affected by sarcoma themselves. For Dr. Sorrel Bickley, the Director of Research, Policy and…
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A research agenda driven by patients – Sarcoma UK to fund £2 million this year Sep 1, 2025 | 0 Advances in understanding sarcoma can change the lives of patients – particularly, if the research is result of the efforts and energy of people affected by sarcoma themselves. For Dr. Sorrel Bickley, the Director of…
Read MoreSPAEN becomes SPAGN
Sarcoma Patients EuroNet renamed: Sarcoma Patients Advocacy Global Network (SPAGN) Mission, Vision and Core Values revised Frankfurt/Wölfersheim/Germany On Friday, June 24, 2022, the member organisations of SPAEN voted to rename the association from Sarcoma Patients EuroNet (SPAEN) to Sarcoma Patients Advocacy Global Network, SPAGN for short. The reason for these changes in the statutes was…
Read MoreSarcoma Research Priorities: First results published
In setting the research agenda for cancers it is important to include the unmet needs of patients. As SPAGN, we are listening to sarcoma patients worldwide and bring their input for the agenda to the medical professionals. The results of the first phase of our priority setting partnership project have been published in ESMO Open.…
Read More2021 SPAEN Virtual Conference: 22 – 24 April 2021
11th SPAEN Annual Conference Virtual, global, informative and collaborative The ongoing pandemic and the decision to hold the SPAEN 2021 Annual Conference as a virtual meeting has allowed us to have even more participants in 2021! Over 200 registered participants attended the SPAEN Conference 2021 with internationally leading sarcoma experts and patient advocates representing organizations…
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